On the Road…With Him…AGAIN! by Quincey Dog Surface Navigational Specialist

I am a Scorpio, just like my companion, Chris Stark, and his reader, Helen Lanctôt. I will be two years old on October 26. I am a 79-pound golden retriever. I am also a professional, a certified guide dog.

I was born in England. I spent my first year in Canada with my puppy walkers, the Dockendorff family of Stittsville, who helped me learn to live with people. I went to Obedience School and won first prize.

Before coming to the National Transportation Agency, I went to dog school where I met my companion. We went through a month of dog immersion together. I remember our first meeting:
the bedroom door opened and my principal trainer, Maggie, said, “This is the person you will be guiding. His name is Chris”. Chris and I got to know one another.

It was a happy day for me. I would no longer be living in the kennel, I had finished my six months training. I had learned many things: how to avoid obstacles, how to find my way through mazes like in the “Dungeons and Dragons” game, how to walk right up to the curb with many noisy trucks and cars passing by, how to travel in a straight line, (particularly when crossing streets), and how to recognize simple one and two syllable words of command, such as “Left”, “Right”, “Forward”, “Up up”, and “Sit”.

It was hard for Chris at the beginning. He had to learn to think of us as a team and to trust me. I had to learn to understand his voice, hand and body gestures. Our initial mistakes of turning left when we wanted to go right, or him not walking straight gave way to a shared self-confidence and our meeting challenges together. Speaking for myself, I enjoy finding doors and stairs for Chris.

The one month of training was often difficult and dangerous work. I will never forget the trainer telling my new companion, “Don’t you dare flinch” as she drove her car straight at us and made sure that the tires squealed. This is one of the ways that we learned to cope with traffic.

My life, however, is not all work and awards: I like to play, too. I enjoy swimming and running in the woods while wearing my play collar with bells so that Chris can hear where I am. Some of my other interests include chewing sterilized bones like the one in my office, playing with latex toys like my squeaky pineapple, and taking “love breaks” with my companion.

Graduating with me from the Canadian Guide Dogs for the Blind in Manotick were my brothers Quentin, who will live in Ottawa, too, and Quern, who will be going to Memorial University in Newfoundland, and my sister Quaga, who will be living in Lindsay, Ontario. The rest of my sisters and brothers from the “Q” litter are on the next course, which started the week after I graduated. Just before I left Canadian Guide Dogs for the Blind for my new home, my cousins, ten little puppies from the “Y” litter, were starting the cycle all over again by meeting with their new puppy walkers at the school.

Now Chris and I are a team, working together for the next ten years until I retire on pension. I find the way and Chris gives the directions. Don’t imagine that I’m perfect, because I have my limitations and my quirks: I am colour-blind and don’t see street lights. I don’t like the salt on the winter streets. Unleashed dogs make me nervous. Squirrels and other birds fascinate me.

Essentially, I am very gentle and eager to please. The world, in fact, is so interesting to me that I sometimes get distracted from my work and need immediate sharp correction, which is always followed by a word of praise. So please don’t tempt me with petting when I’m in harness. All the nice people here at the NTA are interesting to me, too, but I have to concentrate on my work. Please don’t offer me food, because it will encourage me to scavenge and want food in restaurants. Don’t worry, I get two good meals a day.

When I am not in harness, I will be pleased to say “Hello” to you when you ask my companion first. While Chris is working, I can be found sleeping on the carpet under the desk in our office.

I look forward to working with you all!

ON THE MOVE WITH ELI IN ISRAEL by Chris Stark

I first met Eli Meiri in Florida at the 1999 World Congress of the Society for the Advancement of Travel for the Handicapped (SATH) where we toured a cruise ship together to examine its accessibility features. Eli is an Israeli tour operator who specializes in disability travel and also a wonderful human being. We next met Eli ten months later when he and Louis from the Canadian Embassy came to the Ben Gurion International Airport to welcome me, my guide dog Quincey, my wife Marie and her guide dog Zena to Israel after an 11 hour flight from Canada. Our two guide dogs were glad to see the green grass of the Holy Land. They were two passengers who were not able to go to the bathroom as we flew over the Atlantic Ocean, across southern Europe and over the Mediterranean Sea to reach Israel.

This was the beginning of three weeks of enriching experiences orchestrated by Eli. Our first stop was the Canadian Embassy to make a presentation to the staff to mark the United Nations International Day of Persons with Disabilities. Participants were particularly interested in Eli’s perspectives and insights about persons living with a disability in Israel.

Then it was time to tour ’till we dropped, as our adventure unfolded in a blur of varied, fresh experiences each day. Initially, tour companies were reluctant to accept us because we were people who are blind travelling by ourselves, but Eli’s gentle persuasion won the day and United Tours went to the dogs for us for a week as they took us from the north to the south of Israel.

Israel seemed like a never-ending journey of discovery. The tour guides are the finest and most knowledgeable we have ever encountered. They must complete a two-year course to be licensed and seemed to enjoy telling us about all there was to see, do and experience. Walking through an artist’s quarter in Safed, feeling the markings at a station of the cross on the Via Dolorosa, being guided into the darkness to hear the names and ages of children killed in concentration camps or tramping around the ruins of Masada were memorable experiences tastefully shared with us.

For five days, we were up at dawn and experiencing new things for the next 12 hours. The tours were cannily crafted into a mix of driving, walking and relaxing that maximized our ability to absorb the delights of this wonderful land. The constant change of pace became a rhythm of enjoyment. Thanks to the tour guides, we were freed from the hassle of getting lost, missing information because we could not read the exhibit descriptions and finding washrooms. Yes, they even seemed to be helping us manage bodily functions with frequent announcements of times between washroom stops. It was a fantastic human experience. The guides loved to talk and that was the major accommodation we needed to make the tours accessible.

We slept at a kibbutz, walked in the Dan Nature Reserve, learned about Syrian rock rabbits without long ears, visited the Jordan River baptismal site and saw the modern art (including the hundreds of coffins Yoko Ono had turned into art at the park of the Dead Sea scrolls). We also walked through the park at Herzel’s Tomb where we felt the little stones placed on the tomb as a mark of respect by passers-by and listened to the echo of singing in a Roman amphitheatre. At the Kennedy memorial, our bus broke down and so we made do with pleasant conversation in the peaceful woods as we awaited the repair truck. It had been summoned by a call on the ever-present cell phone which every Israeli seems to constantly use.

We next met Eli the evening we arrived in Eilat, the Israeli playground for fun seekers at the head of the Red Sea. We sipped wine from the Golan Heights and told him of our plans to take a six- hour cruise on the Red Sea which included a visit to an Egyptian coral island.

Our last meeting in Israel occurred near the end of our third week when Eli and his wife Anat shared a day with us. This gave us the opportunity to learn about everyday Israel. Anat, a teacher, qualified tour guide and soon to be qualified masseuse, made the Israeli culture bloom for us. We climbed Mount Carmel to overlook Haifa, visited the Israel National Museum of Science (which has a program to develop tactile exhibits) where we felt a real Israeli tank and walked along the shore of the Mediterranean among the Roman ruins at Caesarea.

A highlight of our time in Israel was when Eli took us to the Ramat Hanadiv Memorial Gardens. We felt a raised map of Israel carved in Jerusalem stone and strolled through the Cascade Garden, the Rose Garden and the Palm Garden. We also delighted in the scents at the Fragrance Garden, where we could walk around and pick herbs to experience their aroma. Marie was able to read some of the Braille inscriptions throughout the gardens.

As the day drew to a close, the Meiri family welcomed us into their home for a delicious Israeli supper. After the main course, they picked desert off a tree in their yard so that we could eat star-shaped slices of Karambula fruit. Quincey and Zena had a great time running around the Meiri’s backyard with Hith, a retired guide dog the family had adopted as a pet.

Even on this idyllic day, we briefly encountered at the Bahai temple the one inaccessibility feature that caused us discomfort in Israel. Throughout our stay in Israel, churches and other holy places, such as the Church of the Holy Sepulchre, routinely refused us admission because we were accompanied by the miracle of sight – our guide dogs.

As in most countries around the world, the level of accessibility was inconsistent. The newer museums, sites and places of interest seemed to have some accessibility amenities like ramp access. Even most older sites, including those in the old city of Jerusalem, could be reached, although often by circuitous routes. We were told that the country’s passenger train service was not accessible by persons who use wheelchairs and there weren’t any accessible tour or city buses in regular use for all citizens. The tendency seemed to be to make “special” arrangements rather than integrated service arrangements. It was rare to encounter tactile signage in commercial establishments or accessible washroom stalls in public places.

A lot remains to be done but a lot has been accomplished. Usually, guide dog users have trouble with taxi access but in Israel this fear never materialized. It became routine to pile into a cab with two dogs and a roof rack full of suitcases and roar off to the airport or other destination. Despite these accessibility barriers, we can’t wait to
return to Israel. We are monetarily poorer, but spiritually richer and eagerly look forward to the First International Conference in Israel on Tourism for People with Special Needs, which we hope will be rescheduled in the very near future.

OFFICE ETIQUETTE

Time to evaluate our behaviour towards our colleagues who have disabilities. Some of us may react hesitantly due to shyness or worry when we meet them. We must overcome these negative and uneasy feelings by telling ourselves that people with disabilities are people just like you and I. Here are some hints and advice which may help them to feel more at ease when encountering a person with a disability. The following is a summary of my suggestions:

As a result of the recognition of the different abilities of persons with disabilities, employees with disabilities are becoming an integral part of most work environments within the government of Canada. Since we all are increasingly working with colleagues who have disabilities, it is appropriate to consider work practices which can enhance this relationship and facilitate full participation in the office.

Although not costly, a little forethought when planning or chairing a meeting, posting a notice, or doing any one of the myriad of tasks associated with day to day activities would prevent barriers for employees with disabilities. This article is intended to provide some ideas which can be put into practice by all employees, and which all will find rewarding.

When greeting an employee with a disability, be cordial and relax. Do not speak unnaturally loud and do not yell. Do not pat the head of a person in a wheelchair; rather, reach out shake her or his hand. Do not be offended if a blind person does not say “hello”, or accept your proffered hand: simply say “I would like to shake your hand”. Always speak clearly and look directly at the person with a disability. Always address the person with a disability by name, particularly when in a group. Never ask a companion, for example, “Would she like a coffee?” and never use expressions of pity or paternalism such as “You poor thing, let me help”. By all means, however, do offer to help. The person with a disability will respond indicating the nature of the help, if any, needed and appreciate the gesture. Never assume: there are as many disabilities as there are people with them. A disability is an individual experience and each person uses her or his uniquely different abilities to adapt to the disability.

Some have described the presence of a blind person as being similar to a ghost passing through the room: there, but not really there. What is meant by that analogy is that persons with a severe visual loss often feel isolated when they are not able to read signs, notices on boards, or see people passing by in the halls, things people who can see take for granted. Making an extra copy of a bulletin board notice and leaving it in the “in” basket of a colleague who is blind, for that person’s reader to read, is one good way to shoo those ghosts away. Similarly, of course, hearing impaired individuals would appreciate written copies of audio announcements and presentations.

When standing in an elevator next to a person who is blind, why not say “hello” and tell who you are. The person who is blind cannot always recognize you, especially if she or he does not come into contact with you every day. Yes, some persons who are blind or visually impaired can recognize people by the sound of their voice or their footfall. For those with a little residual vision you may be recognized by the colour of your outfit until, of course, you change it.

When organizing a meeting, plan with participants with disabilities in mind, just in case. If you know that a person with a visual impairment will be attending, send the notice in the alternate medium which that person uses, i.e. braille, audio tape, large print or computer disk. Some persons who are blind or visually impaired have message systems, so call their phone and read the notice as a message of up to five minutes. When the employee retrieves the message, the information is readily available. Do not forget, however, to send a hard copy too, as one may be needed for files or for circulation.

At the meeting, leave at least one place at the table near the door without a chair so that a person in a wheelchair can roll up to the table with dignity. At the very beginning of the meeting, ask participants to identify themselves. In addition to being an excellent ice breaker, this practice provides participants who are blind with an indication of who the other participants in the room are, something most people take for granted with a quick glance.

Overhead slides and visuals are fine as long as there is a good audio as well. If a document is being reviewed clause-by-clause it is a good idea to have copies available in formats which all participants can use. The same thing applies to bars, charts and minutes. If a hearing impaired person is participating, arrange for interpreter service.

Include a colleague with a disability in your invitation to the group for lunch or coffee: you never know, you may make a new friend.

NAVIGATING THE KINGDOM OF PEACE

NAVIGATING THE KINGDOM OF PEACE
My Journey in Jordan
BY RITCHIE II, ALL-TERRAIN GUIDE DOG,
AS TOLD TO MARIE AND CHRIS STARK

My name is Ritchie and I am two-and-a-half years old. I have been trained extensively and now work as an all-terrain navigator. The main duties in my job description involve being constantly on call to guide a person who is blind.

When I learned that I was assigned to guide a government employee, Chris Stark, I thought I would have a quiet working life of sleeping under a desk. However, in the months since my graduation from Canadian Guide Dogs for the Blind, I have not stopped travelling. I have been on buses, airplanes, trains, boats and subway cars, in hotels and restaurants, and even on a stage in front of hundreds of people. I have had to eat my meals at unusual times and in strange places such as airports. For me, jet lag is thinking it is suppertime in the middle of the morning.

Not long ago, I was lying comfortably under the desk when I started to hear of a big trip to Jordan, which is seven time zones away. I would be called on not only to fly across the Atlantic Ocean without going to the bathroom, but also to cross the Mediterranean Sea. I would have to be very careful to not sniff or lick anyone, because many people in Jordan are not comfortable around dogs like me. Because of the strife in Israel, I thought we might get out of this arduous trip, but the suggestion that we might not come was met with consternation and declarations that Jordan is the Kingdom of Peace. We were told, “You must come, you will be welcome.”

So, the serious planning started. Since there were no laws to guarantee me access to public places in Jordan, a letter in Arabic was obtained from the Jordanian Embassy in Ottawa. They not only wrote a very nice letter for me, but even offered to stamp my international health certificate, my vaccination certificate and my guide dog license. Now I had really official-looking documents that were as impressive as those carried by diplomats. Since I do not have a passport, I felt a bit better having official stamps on my travel documents.

Arrangements were made to have the Canadian Embassy in Amman assist us with the formalities upon arrival. Because of concerns about my acceptance in taxis, I had special transportation arrangements. Munir negotiated with the Grand Hyatt Hotel to make sure I had a place to sleep. Debbie at Rider Travel searched carefully for the flight route that would be best for me. I take comfort in my routines, so we had to plan a schedule that would allow me to eat and digest my meals between flights. The trip lasted too long for me to go without food. Anyway, I cannot focus on my work when I am ravenously hungry.

My journey to the Kingdom of Peace began with a two-hour bus ride on the big blue KLM bus to Montreal. Once we boarded the plane, I slept all the way to Amsterdam, where I had my breakfast in the middle of Schiphol Airport amidst large crowds of people rushing by and speaking many languages I had never heard before. Strange sounds and scents were everywhere.

During our stopover in Holland, in order to answer a call of nature I had to officially enter Holland, and leave the country to get back to the airplane. My partner’s passport was stamped 16 times during our Holland visit.

At first, the staff of Royal Jordanian Airlines was hesitant about letting me in the cabin of the aircraft. However, I was allowed on board after the captain, who liked dogs, was consulted. I was told that I was the first guide dog to travel on Royal Jordanian Airlines. Safely on board, I settled down for another five-hour flight. I woke up once to find my partner gone. I didn’t worry because Laurel, my partner’s colleague, sat with me and patted my head. She had come to sit with me so I wouldn’t be alone while my partner received “special treatment” by being able to go to the washroom.

When we arrived in Amman it was dark. A representative from the Canadian Embassy met us at the airport and he made short work of entrance formalities. However, I needed a place to relieve myself. There was no spot at the airport, so we drove out searching for a suitable location. We stopped at the side of the road, but the smells were so different, I was not able to do what I needed to do. The request for a grassy site was met with the unequivocal statement that “there is no grass in Jordan.” When we arrived at the hotel we searched again, all around the back and sides of the building. There was nothing but concrete, which smelled uninviting to me. This was a crisis. We were tired, I had to relieve myself — and then the clerk at the check-in counter tried to charge extra for me. He finally understood when it was explained that I am not a pet but a mobility aid, and it is unacceptable to charge people extra for any mobility aid, be it a wheelchair or a guide dog.

We waited in the lobby for Laurel. I was very uncomfortable and my ears were drooping. A half-hour later, she arrived and we found a solution. Outside the front door, there was a decorative oasis with palm trees — and blessed grass.

I was soon comfortable, and we settled in for a long sleep in yet another new bedroom. For the next week when anyone would ask, “Where are you going?”, the response, “To the palm trees,” resulted in a knowing nod. I had not been shown to the oasis at first because people thought I would offend. However, no one objected that week. We always picked up and I never once had an accident. The oasis was at the centre of everything and I liked to watch life go by during my five stops a day under the palm trees. Many people passing by the oasis would smile a friendly greeting to me.

It was afternoon the next day when we woke up. It was time for me to work. At first, people wanted to take us everywhere. Gradually they learned that this was my job. I learned the route from the elevator to our room, the way to the dining room and the route to the meeting rooms. I already knew the way to the palm trees, where the grass sparkled in the afternoon sunshine.

At first, people worried when we approached the top of stairs or neared a hazard, but soon people began to accept my competence and skill. I stop at the top of stairs. I walk around obstacles. I avoid dangerous hazards. And I place my nose under the door handle or elevator call button so it can be found easily. By the time the Global Summit on Peace through Tourism started the next day, staff had come to trust my work and would not get nervous about my partner’s safety each time we walked by a danger — such as the opened hotel entry door, which jutted into the path of travel.

There were some things we had to get used to. Elevator buttons did not have Braille or tactile markings. We had to find another solution. Counting down the row of buttons was necessary in order to find the button for the lobby, the conference centre or the floor on which our room was located. There were also no tactile markings on the wall by the elevator door to tell us the floor number. At first we took many wrong turns, but we gradually found solutions for these gaps in accessibility that we take for granted at home. It was explained that many multi-national American corporations cut corners in their five-star hotels abroad, failing to follow the standards required at home by the Americans with Disabilities Act. This seemed to be a source of disappointment for many people we met from abroad. They were dismayed that access is not being implemented when new hotels are built by knowledgeable corporations. They called this practice exploitation.

I have a very delicate stomach so I drank bottled water to avoid any problems. One night, Laurel took us on a walk to buy bottled water. I had to really concentrate on my work because of the many obstacles. There are big holes in the sidewalks, and the hills in Amman have steep slopes and drop-offs as well as hazards such as signs and poles on the walkways. There are many free-roaming cats in Amman, which would tease me and try to distract me. At first I found it very difficult because there are so many of them, but a gentle command or two helped me refocus, hold my head high and march by those cats with haughty disdain. After all, I am a professional navigator.

Later in the week, we had to make the same journey by ourselves for more bottled water. We had a bit of trouble crossing the streets because drivers do not yield for pedestrians. A shop owner, noticing my difficulty, sent his boy and his friends to help us home. At each intersection on the way back to the hotel, they blocked the traffic for me to cross. A policeman came by, and when he understood what was happening, he joined in. It was quite a spectacle as the Amman traffic was parted for me to lead the way back to the hotel. It was the first of several royal processions for me.

I befriended a real live prince, who even took me for a ride in the royal limousine. It turns out that His Royal Highness Prince Raad Bin Zeid is Jordan’s patron of person with disabilities. Because the Global Summit on Peace through Tourism had embraced disability issues, His Royal Highness had agreed to chair the sessions on tourism for persons with disabilities.

It was a great honour for the entire summit to have the participation of a member of the royal family. His presence lent stature and credibility to the message of inclusion that the speakers with disabilities brought to the attention of delegates. The prince arranged for Jordanians with disabilities to attend the presentations. We met many other Jordanians with disabilities, who shared their experiences and expertise with us.

I blushed when His Royal Highness publicly declared in front of all those people at the seminar how impressed he was with my work. I was overwhelmed when he said that “Jordanians need to find a way to look beyond the social stigma of dogs so that Jordanians who are blind can benefit from the independence, safety and freedom provided by professionals like Ritchie.”

The Prince was very interested in how I worked and what I could do. Every day, my vocabulary grew: “Follow the Prince” was a new command I learned to recognize. As a sign of respect for people with disabilities, the Prince declined his seat at the head table and sat with us. This kind gesture was formally recognized by the luncheon speaker. I lay quietly beside the Prince throughout that long luncheon. When my partner was served a large piece of meat and asked Laurel to cut it, the Prince intervened and cut the meat. For the next few days, people would approach and greet us — because my partner had a new notoriety as “the man, with the dog, whose meat was cut by the prince.”

Highlights of the summit included the poignant message from Nelson Mandela read to the delegates. He wrote in part:

“Conflict, violence, warfare and instability still plague too many parts of our world. The suffering inflicted, and more often than not on the most vulnerable sectors of society, demeans all of us as humanity. That it is invariably women, children, the aged and disabled who suffer in these conflicts stands up to the added shame of mankind.

“We so often speak of globalization with reference only to the opening of markets, the removal of trade barriers and the free flow of goods and finances. The free flow of people and ideas, the unfettered exposure of different cultures and customs to each other should be an equally important aspect of the globalized world, of the global village we so often refer to. Tourism has become the primary vehicle for the promotion of such exchange. In the process, peace and harmony amongst people and nations are served.”

I participated in an interfaith service at Bethany on the Jordan near the Dead Sea. The sun and the moon could be seen in the sky at the same time. The singing of the children’s choir was lovely. Afterwards, the children from many lands came over and said hello at me. A journalist on a six-month study assignment with the English-language Jordan Times Newspaper recognized us as fellow Canadians because of the label on the plastic bag in which my water and bowl were carried.

A co-presenter was a wheelchair user from the Republic of South Africa. We visited Jerash with him, and I followed his wheelchair around those ancient Roman ruins. At guide dog school I had been trained to walk on cobbled streets, so I skilfully adapted and navigated the best route by finding the smoothest cobble stones to walk on. On his voyage to Jordan the South African gentleman’s wheelchair had been destroyed by the airline, which had been unable to provide a replacement. So, during the man’s stay in Jordan, he used a very uncomfortable hotel wheelchair. At our farewell meeting with Prince Raad Bin Zeid, a wheelchair was presented to the visitor from South Africa as a gift from the people of Jordan, to help him get home more comfortably. My partner and I received an autographed picture of our lunch with the Prince.

This was a sad time as we bid farewell to all our new Jordanian friends. My fear of being unwelcome in Jordan had been as unfounded as all the other stereotypes about disability we know so well. Even when touring on our own and arriving unannounced, we had been well treated and warmly welcomed. The Kingdom of Peace is a lovely place, with friendly and hospitable people. I met many Jordanians who wanted to get to know me. I enjoyed the dialogue. I speak the universal language of friendship with my eyes and wagging tail, and I always look professional.

At midnight, we left for the airport. The security staff at the airport entrance wanted to know where my “cage” was. They did not accept that I would travel in the aircraft cabin. They weren’t going to let me pass — until my partner informed them that the King had said I was to travel in the aircraft cabin. My partner even invited them to call Prince Raad Bin Zeid at the number on his official card, which he had given to us. Security staff decided not to call the Prince at one o’clock in the morning. I was told to follow an airline person, and we were on our way.

Six hours later, I was entering Holland again to use the grass in the airport park. A lovely lady helped us buy a few souvenirs, and we were on our way again. Thirty-one hours after I left the hotel in Amman, I was in my own back yard playing with Zena, guide dog, and Quincey, retired guide dog.

I have a sense of accomplishment. My professionalism helped encourage delegates to include a strong reference to the accommodation of persons with disabilities. The summit’s final communiqué, The Amman Declaration, proclaimed in part:

“The right of people to travel is a fundamental human right which should be exercised without undue restriction, including the facilitation of travel for those with disabilities and special needs.”

Fence Jumping By Chris Stark

On Canada Day, it is appropriate to reflect on life in this country as a citizen who is blind. Much has changed in my lifetime. Much has not. The opportunities, experiences and exclusions are descriptive of the diverse nature of Canadian society.

School was in a residential institution. Sent from home at age five for ten months of each year in order to learn was my childhood reality. It was an artificial world inside a fence to keep the world out. I remember the taunts of kids going to the public school down the road. Other vivid memories were having to pay older boys a penny in order to be allowed to go to the bathroom, sitting on a knotty wooden floor for ten hours as punishment for not conforming/obeying, and labelled “the village idiot” by the teaching staff.

However, I was fortunate, as school was a crucible of independence and self-reliance. I learned to think for myself, judge what was good for me and fight viciously for opportunity. Career counselling consisted of demanding I decide between working in a canteen, or receiving a pension for the blind.

Surviving school gave me the drive to go to university, when all said I could not do it, and graduate with high honours. I found my first job at age 16 moving wet soggy pea vines around, because no one else wanted a job for seventy cents an hour that covered you with green vegetable dye after each 12 hour night shift. I graduated to sorting soiled laundry in a hospital, and eventually became a manager in a big office serving the public.

Even before I finished school, I started paying taxes and have done so each year since. I have raised a family, and now our two children are living independently, paying taxes and making their own contributions to Canada.

These accomplishments represent lots of fence jumping. Fighting for a sidewalk in order to be able to bring our children to dance lessons safely, arguing for the opportunity to vote secretly in municipal elections, and ability to obtain money from an accessible automated banking machine that verbalizes the prompts, are representative of the thorny barriers to full participation surmounted.

It is tempting to lie back and stay safely behind the fences of exclusion. New technology has resulted in the physical fences being surpassed by higher virtual barriers that are just as virulent in their denial of opportunity and enhanced quality of life. Today we seek appliances with controls that can be operated with touch and with audible cues, cell phones that have audio output of screen prompts, on-screen information for television that is verbalized by digital set top boxes that are accessible and usable by blind people, as well as manuals and assembly instructions for new equipment, and public health information that can be read without sight.

Yes, I have run out of many fenced-in constraints, but each escape seems to lead to a new stockade. When will Canada embrace all, including persons who are blind, in the marketplace of life’s opportunities. Quality of benefit is still the dream. .

As the senior years approach, it is painfully evident that the disability supports are few and far between. Participation is resisted, such as when we were told not to join a walking group in our community because it was unsafe. Health information and prescription directions are not offered in usable formats. Information on home modifications for people who are blind is practically non-existent from CMHC.

Fence busting can make a big difference. As a taxpayer, I look to public bodies to create the positive environment that leads to smoothing out the steeple chase of life. As a Canadian who is blind, it is discouraging to be repeatedly told that the only option to denial of service is to file a complaint.

Persons with Disabilities and the Travel and tourism Business

People with disabilities are visiting more places around the world more often than ever before. Travelling in a wheelchair through the rain forest of Costa Rica on an accessible track, using a walker in the Andes mountains, taking guide dogs on a Caribbean cruise or taking a tour of Boston on a bus equipped with an infra red loop system to help hard of hearing persons understand the guides descriptions, renting an accessible vehicle in Sydney or taking an accessible taxi in London are more and more common every day happenings.

“Travellers with disabilities are looking for the same type of products other travellers are looking for. Proactively encouraging persons with
disabilities to enjoy tourist and transportation features provides tourist destinations with a unique opportunity to promote new business and greater access at the same time. It is a win-win situation.

“Going out, touring and traveling like everybody else is an essential
pleasure of life regardless of age or disability,” emphatically states
André Leclerc, Director General of Kéroul.. Kéroul is a Canadian organization based in Québec. Its mission has been to join the tourist industry in making tourism accessible to persons with restricted physical ability.

In North America, Australia and Europe, persons with a disability
represent about 15% of the population. This market is growing rapidly.

More and more Canadians are travelling. A greater number of these travellers are senior citizens. As the population ages, the incidence of disability increases. Think back twenty years; it was rare to see a wheelchair at an airport for use by travellers. Now airlines routinely provide fleets of wheelchairs to aid passengers travel to and from aircraft within terminals.

Access Canada: Accommodating Seniors and Persons with Disabilities
published by the Alberta Hotel Association observes that “60% of that “60% of the disability market is over the age of 55,” and ” this market also has a higher disposable income than the other segments of the population.” . Many seniors will have their mobility decrease with age and while not always essential, mobility aids and special attention are certainly appreciated. There are almost 4 million persons over the age of 65 in Canada. That number will double in the next generation and make up almost a quarter of Canada’s total population

Demands for accessible services are increasing as more and more visitors with disabilities seek user-friendly tourism opportunities.
Earlene Causey, former President of the American Society of Travel
Agencies, is quoted in the report, The Travel Agency Beyond the Millennium as saying, “Our efforts recognize that travellers with disabilities are not a niche market like religious tours or adventure travel. The traveller
with a disability simply wants to enjoy the same access as anyone else.”

Ensuring that potential customers know of services designed to make
tourists with disabilities feel welcome will encourage people who otherwise would not visit , to book a trip. When tour operators and resort managers ensure the availability of needed services at the right time in the vacation via proper information and booking arrangements, they have created satisfied customers who will come back again. Also, these satisfied customers will become enthusiastic sales persons promoting your destination to others. Developing repeat business from satisfied visitors with disabilities is a practical way of generating future tourism dollars.

Availability of accessibility features and services is a key factor determining travel patterns and spending practices. Travel arrangements for several dozen persons travelling as a group were made with one tour operator with a better record of accessible services than their competitors because one member of the group was a person with a disability.

The economic impact of travellers with disabilities goes far beyond the individual and includes the choice made by travelling companions, be they family members, colleagues or fellow tour group members or tour operators
seeking to serve all. People with disabilities strive for a satisfying travel experience just like all customers. Arranging for the delivery of that product will earn return business. Looking beyond the disability to the travel needs focuses attention on the
service. Knowing what services or benefits will appeal to travellers with disabilities can be the added incentive to clinch the deal. More and more companies offer facilities and services which will appeal to customers with disabilities. Knowing which hotels have wheelchair-accessible rooms, what airlines provide assistance from the check-in counter to the aircraft,
which tour operator has accessible buses and vans that can carry
passengers who use wheelchairs, which museums have information for visitors who are blind, which guided tours can provide information to deaf and hard of hearing participants, or which cruse lines accept service animals are valuable marketing tools.

Providing appropriate travel-related services to this segment of the market is a professional responsibility.

Some tips when interacting with visitors who have a disability are:

– Speak directly to the person.

– Ask IF and HOW you can best help.

– Take the time to understand.

– Avoid touching the person or person’s wheelchair unnecessarily.

Do not distract service animals

– Provide information about accessible facilities, tours, etc.

– Do not pretend that you have understood when you have not.

– Do not hesitate to ask the person to repeat themselves.

– Whenever possible ask questions that can be answered by a simple “Yes”
or “No.”

– Be patient.

Many customers have disabilities which are not visible. Thinking about access when serving all visitors will enhance customer satisfaction.

Take stock of your clientele. Service delivery to clients with unique needs is an important aspect of your customers’ expectations. Recently, executives of a large corporation were embarrassed when their corporate conference
organizers did not know how to make the arrangements for an important
client who traveled with a service animal! Not having expertise in this aspect of the tourism industry can cost your business and negatively affect the bottom line.

Above all, relax, be happy and enjoy meeting a new friend. People with disabilities want to have a good time too. You can make the difference.

Exchanging experiences and understanding each other are the two positive sides of the tourist
experience for the host and the visitor with a disability. Awareness and understanding are the keys to building successful tourist
relationships between people with and without disabilities .

READY, AIM, FIRE! By: Chris Stark

Editor’s Note: Chris Stark is a long-time advocate for increased access, universal design and true inclusion. He is an AEBC member living in Ottawa, Ontario.

It seems to me that the older I get, the harder it is to be independent. While my specialist and hospital clinics communicate with me by email, Health Canada and its agencies do not. Canada Pension Plan will, but I have to call and then wait three weeks. The Ontario government is no better in providing accessible information. I do get pills in bubble packs, paid for by the pharmacy/government, with the packs containing the correct doses of medication for each time of day for a week. This means I can avoid taking the wrong pills in the wrong amounts at the wrong time. Recently, I was asked to monitor my blood glucose level. Here, I outline the research I did on talking blood glucose monitors.

Finding information about products that can be used by persons who are blind is not always easy. As a first step, I spoke with a number of people who are blind, and received a great deal of useful and practical advice. I strongly suggest that others do likewise.

The Canadian Diabetes Care Guide website (http://www.diabetescareguide.com/en/monitoring.html) was helpful in learning about blood-glucose monitoring. While the United States continues to use imperial measurements (milligrams/deciliter), Canada began using millimoles/litre in 1967. Make certain the device you choose can give readings this way.

An article I found particularly useful was “Evaluating Glucose Meters: Talk is Cheap, But Access is Golden” (http://www.nfb.org/images/nfb/Publications/vod/vod_24_1/vodwin0910.htm). Published by the National Federation of the Blind (NFB) in the United States, it says: “The contemporary meters are smaller, faster, and much less expensive than older choices, require only a tiny drop of blood, and are easier to use. However, buyer beware! While these meters are being aggressively marketed to blind and low vision users, only the Prodigy Voice is totally accessible. Despite the hype, you will find that you need sighted assistance to use essential functions such as time and date, and memory review on many of these products.” Another NFB article is “The Talking Blood Glucose Monitor Revolution” (http://www.nfb.org/Images/nfb/Publications/vod/vod215/vodwin0707.htm).

Present choices for talking glucose monitors include Prodigy Voice, Prodigy Autocode, Oracle, Advocate, Redi-Code, Companion, Embrace, Clever-Chek, Smartest Smart Talk, and the Accu Check VoiceMate. I have tried the Prodigy Voice and the Oracle.

There are basically three activities involved in monitoring your blood sugar level: pricking the skin with a lancet from an applicator; getting some blood and putting it on the test strip; and having the blood glucose monitor read the result to you. Also, in my case, doctors want to see the record of readings.

Both the Oracle and Prodigy monitors come with manuals in audio format. While I found each manual adequate, the one for the Prodigy contains a chapter on carrying out a blood sugar test as someone who is blind, which I found useful.

Each talking glucose monitor comes with lancets and lancet devices, but it appears that it doesn’t matter which ones you use; there are universal lancets available that fit most lancing devices. The test strips used for each monitor, though, are specific to that product. Once you decide on which monitor to use, the correct strips have to be purchased. The talking monitors are usually free or very low cost, but the test strips are fairly expensive. The Prodigy I use requires the Prodigy Voice strips.

Both the Oracle and Prodigy come with software to install on a computer to record readings. Each has an internal memory to keep track of about 400-plus readings. While the Oracle software is not accessible without using a mouse, the Prodigy software is supposed to be accessible, though it was being updated at the time of this writing. The company did acknowledge that the software would be reviewed by people who are blind to make sure it continues to be usable.

I personally find the Prodigy more user friendly than the Oracle. It is easier to get blood onto the strips and get a reading, and the review and settings functions are totally accessible. While I can control the Prodigy independently, sighted help is required to alter the Oracle’s settings and read the history of results. The downside of all of this is that neither device is available in my province and test strips have yet to be approved for use. Therefore, you have to order the devices from a supplier.

The Prodigy can be ordered from several U.S. places, which ship it as “Medical Supplies for the Blind.” They go right through customs, but you should check on regulations (Canada Customs: English: 1-800-461-9999; French: 1-800-959-2036). Future Aids/The Braille Superstore is a Canadian company that sells the Prodigy in provinces where the device has been approved for use (Toll Free: 1-800-987-1231; Email: sales@FutureAids.com; Website: www.braillebookstore.com).

As a newbie, I found it challenging to tell if I had punctured the skin to get enough blood to test. But as the Prodigy manual says, “Don’t give up, keep trying and practice, practice, practice.” And though I shouldn’t be, I’m appalled at the lack of locally available, useful information. Diabetic organizations and most pharmacies had no information for people who are blind. The only device they knew about, and could get, was ten-year-old technology, the Accu-Check VoiceMate, in which the audio is an add-on. It is the most expensive of them all, costing $400-$500.

Compared to when I was younger, the same old problems persist–lack of resources and lack of accessible information, not to mention people who know nothing about blindness except perhaps pity. This has motivated me to outline my impressions and experiences as a new user, hoping to help others who find themselves in a similar situation.

Hot Dog, Fun in the Sun! Prepared by Chris Stark and Marie Laporte-Stark

Hup up, Luna Dog! Hup up! With a wag of her tail, a shake, and a jangle of the harness, this golden retriever guide dog answers the “all aboard call” to start the long airplane journey home at the end of another enjoyable vacation in the hot sun.

Travelling abroad with a guide dog can be complicated, time consuming, hindered by a general lack of awareness, and fraught with bureaucracy. The effort, however, is worth it in terms of freedom and independence, which are, after all, the reasons why one gets a guide dog in the first place. The obstacles can be overcome with research, planning, and a little public relations work.

By focusing on Caribbean vacations, this article will share some of the tips that we have found, from our own personal experiences, to work well. Travelling to the U.S. we find effortless, although travelling to other parts of the world is, to date, outside the scope of our experience.

Our family, like a growing number of Canadians, enjoys escaping the cold winter for a couple of weeks. We did not experience any real problems until Luna Dog joined our family. The first hurdle to overcome is always in deciding where to go. You will most likely have to do this research on your own and then inform your travel agent. The choice is a matter of which country you can enter with your guide dog rather than which country you want to go to. We set criteria based on what we want to do, swimming for example, and then find a place that both meets our criteria and will accept the dog. The American Humane Society publishes a brochure on foreign travel with animals which summarizes the entry requirements of various countries. This is a good place to start; however, the brochure is not always accurate. For example, it says that Jamaica exempts guide dogs from quarantine regulations, but a letter from the Jamaican Department of Agriculture advises that, in Jamaica, guide dogs are not exempted.

Generally speaking, the list of possibilities for travel with a guide dog among the Caribbean nations are the Bahamas, Cuba, St. Martin, Martinique, Guadeloupe, Puerto Rico, Aruba, Curacao, the Cayman Islands, and the Caribbean coasts of Venezuela, Columbia, and Mexico. Countries which do not allow guide dogs to enter have quarantine regulations modelled on the British system and include Barbados, Jamaica, Trinidad and Tobago, Grenada, Antigua, and Ste. Lucia. At the time of this writing, the Dominican Republic’s policy remains an enigma to us. We mention this in order to point out the difficulties sometimes involved in obtaining information from some countries and the general reluctance of the international travel industry to consider this aspect of the tourist trade seriously.

Our family has visited both the Bahamas and Cuba, which are good examples of the two types of procedures you will have to cope with. In the case of the Bahamas, a form is obtained from the Minister of Agriculture in Nassau, completed and returned with $10 U.S., and in a month or so you receive it back with an official stamp. Next, visit your vet 24 hours before leaving, have your dog examined, and obtain an International Animal Health Certificate. Armed with these two documents, we breezed through immigration in Nassau with no questions asked. One final note on the fee: although the Bahamian officials say that the $10 fee is waived for guide dogs, our application was returned with a request for the fee. Rather than argue, we just paid it in order to speed up the process.

Cuba is a good example of the other pattern of entry requirement. First, obtain an International Animal Health Certificate from your friendly neighbourhood veterinarian. Have the certificate signed and stamped by a Canadian Department of Agriculture veterinarian. Have the certificate legalized at the our Department of External Affairs’ nearest office. Take or send the certificate to the nearest consulate or embassy, pay the fee (in this case $75), wait a week for the wax seal, then take your certified certificate and away you go. Some countries will accept either the Department of Agriculture or External Affairs stamp, so check first. Some countries have a time limit, such as having the veterinarian’s examination within 30 days of the trip.
It is important to find a travel agent with good communication skills, who knows the business, and who is committed to the project. Even so, it will be necessary to provide information, combat misconceptions, and provide direction in resolving the obstacles that will be placed in the path of the guide dog.

The first of these obstacles is the persistence of tour operators, property operators, and governments in treating the guide dog as a pet. We have never completely conquered this problem, but continue to combat it. A document in the language of the country concerned explaining the function of your guide dog can be very helpful, especially if it is on official government letterhead or officially stamped. This document will work wonders. If you cannot procure such a document, simply make back-to-back photocopies of guide dog information with the entry permit or even a form letter from the tourist board inviting people to visit (which we did in the case of the Bahamas).

Try to choose a tour operator who will work with you and your travel agent to encourage the destination property to accept your guide dog. Some companies expect you to make a booking before they will ask and do not seem to understand the feelings of rejection you can experience as a result of being denied access because of your guide dog, especially if this happens several times. Also insist that the tour operator send an explanation of the dog and its function in the language of the country concerned ALONG WITH the request for a reservation. Some will refuse. Others will ask for extra money to cover the cost of cleaning up after the dog or as compensation for the extra body in the room. Others will demand a muzzle. These have all happened to us and we have rejected all of these conditions.

Try to select a chain hotel’s property for your holiday destination. While there may not be any laws in the country you are visiting which guarantee access, the affiliate hotel is governed by the bill of rights of its own parent country. Chain hotels are familiar with the concept and will, in general, offer the least resistance. The Best Western British Colonial in Nassau is a case in point. It was one of the hotels best suited to our purposes in which we ever stayed. The security guards even chased off the occasional loose dog and kept the grounds safe for Luna.

Stray dogs are a concern, but we have yet to have a problem that we could not cope with. On the streets, people may be afraid of all dogs, including guide dogs, since many of these countries’ dogs have been made extremely aggressive by having been abusively trained as guard or attack dogs.

Once you have a reservation, your task is not over. Insist that reference to your guide dog appears on all documents that contain your name, including the travel insurance document. Should you have problems or if anyone tries to penalize you for the presence of your dog, you will have written proof of the fact that the presence of your guide dog was well known and accepted at the time of sale. Watch the terms and conditions of the tour operator. For example, some companies say that seat selection is on a “first come, first served” basis. That is fine, except that it is their responsibility to ensure that we have a seat with sufficient room for the dog. On most aircraft this means the bulkhead seat. We insist on this.

Ensure that your tour operator notifies the airline you are using that you are travelling with a guide dog at the time of reservation. Ask for a copy of the airline’s rules and procedures for accommodating guide dogs. This is important. One airline told us that it would not accept the dog unless she were muzzled. When we asked for that rule in writing we learned that as long as the dog was wearing a harness she would be accepted. Carry this rule with you when you travel. Staff, particularly of charter carriers, may not be used to dealing with travellers with disabilities. It would be very difficult to deal with the “muzzle matter” at an airport early on the morning of departure, not to mention the fact that it would just add needless stress. Just give the agents a copy of the airline’s rule and leave it to them.

On the way to Cuba, Security at Mirabel required the airline to re-issue a boarding pass because the original did not include the guide dog. On one occasion at an airport, when the ground attendant was asked where would be the best place for the guide dog to go to the washroom, he proceeded to yell into his walkie talkie “Where’s the nearest fire hydrant? I’ve got a dog who needs to go!”

Obtaining a copy of the airline’s applicable rule or tariff, well in advance of the day of the trip, is also a good way of ensuring that the travel company has advised the airline of your guide dog at the time the reservation is made. At the check-in counter the airline will ask to see travel documents for you, including your passport, and for the dog, the permit and/or health certificate. Airlines must ensure that all passengers have the proper documentation before individuals are accepted by them.

This forethought should ensure that your vacation is truly relaxing. At your destination, your hosts may not be familiar with independent blind persons, let alone guide dogs. Many funny things will happen and you should be tolerant, within reason. People on the beach seeing the dog being harnessed would ask if we were going to ride the dog or run the dog in the dog races. Restaurants, cabs and busses will be worried about their licences and getting in trouble with their own authorities. Giving them a sense of security by offering the proprietor or driver a copy of your official-looking awareness document about guide dogs helps. Offering the person a copy to keep is, in a sense, providing that person with a permanent defense, if hassles should occur after you leave. We had eaten in one spot several times when one day a customer started to fuss about Luna. The owner produced our paper from under the counter and proceeded to read it in a loud voice to all concerned. Once the customer understood, he was very friendly. Yes, we made a bit of a spectacle but it was better than going hungry.

SPECIAL SERVICES ARE FOR HIGH ROLLERS

Travelling with guide dogs in the United States is still sometimes an adventure, even after the passage of the Americans with Disabilities Act. We were looking for a place to relieve our guide dogs at O’Hare International Airport. We had 57 minutes between flights en route to San Diego for a baseball sports trip. We had spent fifteen minutes in a futile attempt to get airline staff to assist.

A fellow passenger with a mobility impairment offered to help. He showed us to the front of the terminal and sure enough there was some grass. The guide dogs did their thing and we were on our way.

Despite advanced requests, airline staff were remarkably indifferent to our need. Surprising since it was their aircraft which would have been soiled if an accident had occurred on the second flight of our 9 hour journey. “After all this is an airport, what do you expect” was the response.

When travel problems arise as a result of indifference, the only solution is self help. In this case, the actual relieving took ten minutes, less time than we spent trying to get help in a large, strange terminal we had never visited before. Oh well, we were on our way again.

A few hours later, we were relaxing by the pool at our San Diego hotel in bright sun shine with pleasant mid 70s temperatures. We were listening to the San Diego Padres announcers broadcast the last game before the all star break. The game was with the Montreal Expos, the team we would follow after the break on their California road trip.

Since the Expos were doing very well in the game, it was strange to listen to the Padres announcers trying to find positive things to say, Eventually the announcers gave up in a string of. “mercies”.

For us, fans who are blind, the radio plays a big part in our ability to enjoy the game. We sit in the stands with earphones stuck in one ear and listen to the play by play descriptions over the radio, while listening to the sounds of the ball park with the other ear. However, the California games were a few days away. First it was time for a bit of sight seeing.

A visit to Tijuana for shopping produced a few bargains. A nice leather back pack was purchased for $20 after some hard bargaining. The guide dogs gave a wide berth to the many “burros” they also called “Mexican Tigers” standing on the sidewalks waiting to have their pictures taken with passing tourists.

After a tiring morning of shopping, it was off to —-for a Mexican lunch and a relaxing afternoon at the beach. All the visitors stuck to American food as they were worried about getting sick with the “tourista”.

The beach was wide and sandy. The water was a bit wavy and noisy so the dogs would not venture too far into the sea. The water was surprisingly cold at 70 degrees and helps to explain the mild pleasant coastal climate while inland locations sweltered in the summer heat.

After a romp on the beach, the dogs settled under an umbrella for a snooze. Soon a strange pungent aroma woke them up. Thus began an alert afternoon for the dogs watching pair after pair of horses ride by as people enjoyed an afternoon sea side ride.

All too soon it was time to leave and prepare for the next leg of our journey, a visit to Los Vegas.

Wow, was it hot in Los Vegas. Temperatures over 100 degrees every day. Most people seem to live inside huge resorts filled with the noise of slot machines, gaming tables and loud music.

At our hotel, the request for the special services desk for help with orientation information was met with consternation. We were informed that in Los Vegas, the only “special services offices were for providing assistance to high rollers.” Assistance for persons with disabilities was non-existent.

We had to fend for ourselves and by the end of the three day stay, we were able to get around our hotel with ease. The guide dogs were cruising through the rows after rows of slot machines as if the had been doing it for years. Slot machines were everywhere, even in the bathrooms. It was gaming on wild.

Staying in Los Vegas was like what we imagined living on a space station would be like. The heat meant that people tended to spend more time inside surrounded by video screens, bright lights and lots of electronic noise rather than out side in the 100 degree temperatures.

In the shade, it was quite pleasant outside. We spent many hours in the shade near the pool. The heat was so dry that the dogs would stay for hours without panting. However, the sun was another matter.

During the day, we avoided the sun. At night, we visited several of the monstrous hotels on the famous Los Vegas Strip. This city has 12 of the 13 largest hotels in the world. We stayed at the 13th largest hotel in the world, The Riviera, with 2273 rooms. The largest hotel in the world will be the 5009 room MGM Grand Hotel and theme park.

An average of 6589 couples say, “I do” every month in Las Vegas. Marriage licences cost just $35 dollars at the Clark County Marriage Licence Bureau which is open 8 a.m. to midnight Monday to Thursday and 24 hours a day on Weekends. So, the divorce capital of America is now trying to become the marriage capital of America, with Valentines Day and New Years Eve being the most popular marriage days of the year.

There is even a Casino Radio providing tourist information and calling itself, “the best deal on the dial.” It was a great source of information for people who could not read the tons of written ads and offers. The radio described restaurants, buffets, show times and hotel features.

More than 21 Million people visit Los Vegas each year. Revenue from gaming tops 4 billion dollars annually. We contributed to this profit. We lost all of $12 dollars in Los Vegas but one of our travelling companions cheerfully lost his budgeted gambling amount of $2000.

The Los Vegas Strip is a famous place. We had red about it in many talking books. In reality, it, like Hollywood, did not live up to expectations. It was noisy and dirty. The sidewalks were narrow, uneven and in need of repair.

The walks on the strip was memorable for us, however, because our dogs were attacked by two unleashed pets. There was a tense couple of minutes while we tried to protect our guide dogs from the other animals until help arrived. Guide dogs are not aggressive. In general, they will not even defend themselves unless seriously hurt. They look to us for protection and we did our best. Fortunately, no one was seriously hurt.

In Las Vegas, we always carried lots of water for the dogs. We never let them lay in the sun. We would not walk on the streets during the day for fear that the heat from the black asphalt roads would burn the dogs’ paw pads.

At night, we were free to roam in comfortable temperatures. We attended several Las Vegas shows including the performance by Canadian Rich Little and His Copy Cats at the Sahara Hotel and the hit show SPLASH at the Riviera.

Guide dogs do not like loud sudden noises and we became a bit worried about Luna because she began to fidget during the SPLASH show. We thought that maybe she had a problem needing a vets attention. The photographer who took pictures of patrons was a dog lover. She spent more time, with our permission, petting the dogs under the table than taking pictures during the show.

When she learned that we may need a vet, this lady went out and looked up the address and phone number of the nearest vet to our hotel and gave it to us. Although, as it turned out, we did not need to visit the vet, this thoughtfulness was very much appreciated.

We were soon off to Los Angeles for the first of our 11 baseball games. We flew on a carrier called Southwest American Airlines. They were a “no frills” airline. They did not even have seat reservations. We were worried at first about getting seats with room for the dogs on the 9 flights we were taking with this company between western United States cities.

Our worries were unfounded. Although the staff wore shorts and short sleeve shirts, there was nothing casual about their professionalism. Directions were given in explicit language which enabled us to find boarding gates on our own. We were the first of the walk on passengers which meant that we always had access to the seats with adequate room for the dogs.

At the front of the aircraft, they had two rows of seats facing one another. This configuration allowed six people and two guide dogs to travel in comfort with room for all. A highlight of the whole trip was these 9 flights on Southwest American Airlines and the ever present professional, courteous service. The staff even made a point of telling us that there was sufficient oxygen masks for the dogs in the event of cabin decompression. Rarely do the traditional airlines show this level of consideration and service to guide dog users.

We had visited Los Angeles before. So, we passed up the city tour in favour of learning the hotel. A wise decision as the other 30 members of our group returned to the hotel in shock after a wild ride with a bus driver who narrowly missed cars and often could not shift gears on the many hills of Los Angeles and had to back down many a busy city street.

Although the Expos lost 3 of the 4 games at Dodger Stadium, Chavez Ravine, this was the most enjoyable series for us. The stadium staff were courteous and attentive. The food was good for stadium fare and the seats in the stands had adequate room for the dogs to lay down in the stadium row during the game. Vince Skully, the Dodgers radio announcer, was a good commentator and so we really enjoyed the stadium and atmosphere. We purchased a radio in the shape of a baseball to take home as a souvenir.

Since the games were at night, we had the day to pursue other interests. We visited Universal Studios. We were frequently forced to take a different route than the rest of our party as we could not use the escalators. This was a bit disruptive when trying to enjoy attractions together. We were often taken directly into a ride while everyone else had to line up for a half hour to get in. We ended up waiting an equal time for everyone else at the end of the ride. The Back to the Future and the ET rides were particularly enjoyable.

Near the end of the visit, we took the dogs to see the animal show. We heard Beethoven, the new lassie and many other show animals. Our guide dogs were mighty interested in that show. They watched the birds tricks with wonder but seemed to treat the dog antics as nothing special. We found the animal show by accident as we searched for a place to relieve our dogs. Most staff were non plussed by the request until one young fellow remembered that Universal Studio had its own resident canines and took us there to use their runs. The trainers were glad to see us and made us feel most welcome.

By mid afternoon, the crowd had become horrendous and it was hard to move about the park. No matter, it was time for us to leave to ready ourselves for yet another evening baseball game.

Hotel staff were also surprised that we found grass in their courtyard suitable for relieving the animals. They were also relieved. Staff knew the had to accept guide dogs at this new hotel but not how the dogs would relieve themselves. This is a preoccupation of those who are not familiar with guide dogs. We are often complimented on our dogs’ ability to use the toilet as we leave public washrooms.

Lugging kilos of dog food around in our luggage really adds to the weight and difficulties on a trip like this with many flights and hotels. So, we planned to restock our supply during the trip. When the time came, we were still in LA. Our hotel was in the business district and there were no store nearby. A staff member at the hotel drove us to a supermarket in their limousine to get dog food and only in LA would no one bat an eye at going through the supermarket parcel pick up in a limousine with two dogs aboard. Maybe Beethoven and Lassie shopped at that supermarket too.

Early the next morning after another pleasant flight, we found ourselves in San Francisco. As the baseball games at Candle Stick Park were in the afternoon, we went directly to the stadium.
Upon arrival at the stadium, we looked like ducks out of water. Candle Stick Park must be the coldest and windiest place on earth. Marie just had to have a $35 dollar pair of sweat pants from the souvenir shop to cover her legs. I sat shivering in the stands. I looked so pitiful that the San Francisco Giant fan sitting in front of me gave me a big woolly horse blanket to snuggle under. He took great delight in showing the tourists the wind breaker he was wearing. When we returned the next day, we came armed with all the long pants, sweaters and jackets we had brought with us.

San Francisco provided the most interesting sight seeing of our trip. We visited the Golden Gate Bridge, Oakland Bridge and marvelled at the recent earthquake damage and had an enjoyable harbour cruise followed by a tour of the infamous Alcatraz prison. We enjoyed our evening walks through China Town and along the streets of Fisherman’s Wharf. The cable car ride provided a sensation of a by-gone age but walking up the steep hill of the crookedest street in the city nearly did us in. It was nearly straight up in spots and went on for blocks in a vertical direction.

San Francisco is a unique place with character of its own. One of our bus drivers lectured us on the fact that the United States was really socialist country and the Armed Forces wit their health and social benefits was the America’s socialist institution. We caused a stir when the dogs steped out of a stretch Cadillac onto the streets of China Town on our way to supper at Longs. The Holiday Inn Persisted in keeping the only piece of grass on their property, a scrubby patch of weeds, under lock and key and each trip to the dog patch was like a visit to an alcatraz maximum security cell.

After the Expos lost three games in San Francisco, it was off to San Diego where our team won three out of four games, so, our trip ended o an up beat note. The mid 70’s temperature was ideal for lounging around the pool all day which was exactly what we did. Occasional walks along the waterfront to Sea Port Village helped to add a bit of variety to pool lounging.

We had an opportunity to briefly speak to several players and team broadcasters during our stay at the same hotel used by the team. Several members of our group were upset when they observed the pitcher eating a big buffet meal an hour and a half before he was due to pitch, They were right this pitcher lost his game.

One of the pleasures of any trip is the people you meet and the new friends you make. This trip was no exception. We enjoyed several pleasant meals with an industrial psychologist and his wife who we met for the first time when attending the Rich Little Show together in Las Vegas. She was petrified of dogs and nearly did not get on the plain when she heard that two dogs were part of the party. Through the trip, she tried to overcome her dislike of dogs. The more she tried, the more pleasant time we spent together. On their wine tasting trip to the Napa Valley, they acquired wine for us. We even benefited from some free psychological services as he used his skill to solve our access problem with the stadium elevator. Even though this elevator was for use by persons with disabilities, it was commandeered by the press core and the first evening we nearly got locked in Jack Murphy Stadium waiting for the elusive elevator.

We were surprised about the few incidents of attempted denial of access of our guide dogs in California, a restaurant in Los Angeles, a cafeteria at San Francisco International Airport and The Stadium Club at Jack Murphy Stadium in San Diego where the host wanted to put our dogs behind a curtain in an anteroom. We never imagined that we would have to educate people about their own laws but fortunately we had photocopies of the California statute relating to service animals which we distributed liberally in response to this treatment.

Our trip home was very smooth. After all, we were retracing the route we learned on the way out to California. In Montreal, we landed at 10:10 a.m., passed through immigration, cleared customs, relieved the dogs, travelled by shuttle to the Dorval station, bought our tickets and had five minutes to wait for the 10:57 a.m. train to our home town, Ottawa.

No sports trip would be complete without statistics. Here is the box score for our trip: 16 days, 3 countries, 8 flights, 2 trains, 2 boat trips, 11 baseball games, 3 stadiums, 5 cities, 4 hotels and numerous bus, van, limousine and taxi trips. We are now longing for another idyllic vacation under palm trees on a secluded beach.

DO YOU HAVE A RESERVATION?

The hospitality industry is striving to keep its market share and to keep its rooms occupied. Competition is stiff. Customer service and satisfaction are key elements in strategies to keep and expand market share. Does this strategy extend to guests who are blind?

The experiences of frequent travellers Marie and Chris Stark in Canadian hotels suggest that the needs of the potential market of travellers who are blind are not understood or met by this country’s hotels. This is surprising given that meeting the needs of people who are blind costs very little in comparison to the costs of installing physical accessibility features such as ramps and automatic door openers.

Simple “low cost/no cost” measures would substantially improve the comfort and independence of guests who, like Marie and Chris Stark, are blind. The repeat business that would be generated by the growing number of travellers like the Starks would more than pay for the cost of the measures suggested here:

– Is there a sidewalk from the entrance of the hotel to the street?

– Are there tactile markings and colour-coding on the curbs, stairs and entrance doors?

– Have all sandwich signs, protruding objects or other obstructions been removed from the entrance area?

– Are doors, particularly glass doors, easy to perceive and open?

– Is there a designated patch of earth with a garbage can close by on the hotel property and near the hotel entrance for the use of guide dogs?

– Is the check-in desk near the door?

– Are there way-finding cues for persons who are blind to find the right wicket or to line up?

A negative answer to any of these questions can mean an obstacle to persons who are blind.

Perhaps planners and designers never conceived of the possibility that Marie and Chris Stark would want to travel independently. The drive for independence, together with the availability of mobility aids such as guide dogs, have liberated persons who are blind from being dependent on others for everyday activities. The Starks are independently mobile, on the move and they expect equal service. Lack of accommodation is a source of frustration and humiliation for them. More and more professional and business travellers who are blind find that the lack of accessibility measures constitutes a career impediment. Persons who are blind can be forced into a dependent relationship with work colleagues, business partners or competitors. Such a relationship can make a person who is blind appear less capable than a sighted person. For example, sighted persons can read things like direction signs and room numbers for themselves. Persons who are blind must be able to do these things, too.

Chris Stark imagines receiving a hotel orientation and familiarization package in braille, large print or audio-recorded form. It would tell him about the hotel’s amenities, its location and hours of operation, just like the small ink-print books that most guests find in their rooms and take for granted. In addition, this alternative media orientation kit would explain how the air-conditioning and heating thermostats in the room are operated, the layout of the remote control for the television, the workings of the in-room clock radio and whether one must dial “8” or “9” to get an outside line to make a local phone call. It would even indicate how to determine the contents of those little bottles in the bathroom.

If there is an electronic locking system on the room doors, a tactile marking on the card to indicate the correct side up and the right end in to open the door would be helpful. It can be as cheap and simple as a piece of scotch tape on the door card that would otherwise be a smooth surface with no message that is discernible to Chris Stark. It would also help if the locking mechanism made a “click” sound when the connection is made, in addition to the open door light.

Another essential feature of accessibility at hotels for people who are blind are raised, brightly coloured numbers on the room doors. Tactile markings and voice announcement systems on elevators would also help persons who are blind feel more relaxed and comfortable at a hotel.

Not surprisingly, however, a well-trained professional staff who understand the varied needs of people with disabilities can be the key to a successful visit. Such staff understand that people who are blind require information in verbal form. Neither Chris or Marie Stark will see at a glance what is available in the way of services and amenities. Responses to their questions and requests for directions must be in direct and explicit language. When giving directions, people can also use sound and sensory cues like “The elevators are past the water fountain, next to the flower stand”.

One real difficulty Marie and Chris Stark have encountered as hotel guests is being assigned a room designed for the accessibility needs of people who use wheelchairs. Chris has had to kneel down to hang up his coat and then bumped his head on the shelf when standing back up, while Marie has struggled with toilet levers and flush chains in unfamiliar locations. Few things are more frustrating than feeling along a wall or floor behind a toilet, looking for the flush.

Some hoteliers really care and try to accommodate all people with disabilities. Many, however, do not understand the accommodation needs of people who are blind. In turn, there are no accurate rating systems to help Marie and Chris Stark make good accommodation selections. Most tourism departments publish directories of accommodations, but when Marie asks about the needs of people who are blind, the ensuing silence is telling. Little or no attention has been given to these needs.

When Marie and Chris Stark travel, they look for hotels with service-oriented staff and user-friendly physical layouts and locations. They look for a hotel with doorpersons to provide orientation and directions. It is time for an accessibility rating and a directory of hotels that really accommodate people who are blind.

If the “payback” period for a relatively small investment is short, why have most hotels not already made accommodations for their guests who are blind? The answer lies in the general lack of understanding by Canadian society of blindness, its nature and effects. This lack of awareness results in facilities being certified and promoted as accessible that are not designed to meet the needs of all persons with disabilities.

Both the hospitality industry and government need to recognize that the approach to accessibility to date is seriously flawed. Action needs to be taken to make accessibility a universal concept.

THE PRICE OF SOME BALLOTS to vote in elections

Voting in elections for people who are blind continues to be a process of indignity and a violation of our privacy and democratic right to cast a secret ballot with confidence. That we are making the choice on the ballot we intend
Only minor changes in federal, provincial and municipal elections have been made in the last 15 years. The barriers remain. .

THE CCD HORROR GAZETTE: THE PRICE OF SOME BALLOTS

edition -, July, 1999

Well-known activist Chris Stark of Ottawa claims he has discovered
something more painful than a visit to the dentist, more traumatic
even than a root canal. All you need to do to get your share of
this misery is want to vote, be visually impaired, and live in
Ontario–or does this apply to just Ontario? If you know more than
we do about that, let us know.

Our story begins a few days after Premier Mike Harris called the
1999 provincial election. An item of mail arrived at the Stark’s
home that they managed to determine–neither Chris nor his wife,
Marie, is able to read print–was an information sheet from
Elections Ontario. On enquiring, they were told that a tape
version had been ordered from the canadian National Institute for
the Blind, but that the delivery date wasn’t known; “call back in
a few weeks.” Eventually, Elections Ontario agreed to send this
material over the internet. They further requested some documentary
information indicating what provisions had been made to accommodate
blind voters. They were told that someone from Elections Ontario
would call back but it never happened, even after several reminder
phone calls.

Chapter two in this saga begins with the arrival of the enumeration
card, once again, in print only. “It would have been nice,
comments Chris in a May 24 posting, widely circulated on the
internet, “to have had some tactile marking or even a braille card
name on all cards, so that when people who are blind received them,
it would be possible to separate these cards from the junk mail.”

But the scope of Election Ontario’s poor attitude to access issues
became apparent only after the Starks realized they would not be
in their constituency on election day. “Because we could not vote
on election day, we called for information about the advance poll.
We called the Returning Office for our area for information about
advanced polls and the provisions to facilitate the casting of
secret ballots by voters who are blind. We were told that the
locations were published in the newspapers. … We were further
brusquely notified that [the official] was concerned with the needs
of “the broader masses”. The advance poll locations had not been
selected with accessibility in mind and adequate, frequent public
transportation service was not a consideration for selection.”

On advance polling eve, they managed to get through to the
province’s chief elections officer, though that encounter turned
out to be more revealing than it was confidence-building. “The
conversation,” Chris recalls, “commenced with him delivering a
lengthy lecture on why we should not use a template. He did not
recommend them. He said that thousands of templates had been
printed and circulated through the province. Very few would be
used. It was a waste of money. It was further stated that the
notched ballots were tested with eight persons who were blind.
However, he was unable to tell us how to use them to vote with
confidence.” Now the question arises, which do you require more
of to be a blind voter in Ontario–patience, or a warped sense of
humour?

These days, as far as the broadest social policy discussions go,
disability–as an issue of governmental concern–is more and more
connected with the word citizenship. That’s not simply the result
of the natural, ongoing evolutionary process of integration,
although that certainly explains part of it. Mostly, this linkage
has come about because for years, disabled advocates have insisted
that “citizenship is us,” every time they get anywhere near an
elected official or a senior civil servant.

When we represent ourselves as equal citizens, it means we’re no
longer “the less fortunate,” “the deserving poor” or “the
chronically unemployed;” it means we now must be related to non-
traditionally, with no preconceptions as to limitations, and in
accordance with the most current of sensibilities and regard. Best
of all, governments have had lots of experience relating to this
handy mental construct of the citizen. Unlike “the disabled” of
old, citizens pay taxes, always demand their full due, are
unexceptional, and can never be safely disregarded.

In consequence, features attributable to citizenship matters have
grown in importance over time for organizations like CCD. With our
agitation (and a significant assist from Canada’s Charter of
Rights), laws no longer exclude blind jurors, accommodations mean
that we are no longer second-class citizens when we provide
testimony … and then, there’s voting in Canada’s elections.
That’s probably as good a segue as any to return to the Starks to
see how they fared when it came time to cast their ballots.

Needless to say, “… it was with trepidation and uncertainty that
we faced the challenge of voting in the advance poll.” Yet they
persevered. Following an official’s instructions that featured the
confident phrase “you’ll see the signs”–they had self-identified
several times–, they surmounted the obstacle-strewn side-walk and
somehow got themselves from the bus stop to the polling station.
“While there,” says Chris, “several sighted voters came in and
voiced concern about the difficulty they experienced finding the
location.”

Since the attendant couldn’t describe how ballots should be folded,
one of the two had its voting surface exposed; so much for privacy.
Both found the circle for marking much smaller than it should have
been, smaller by far than it is for federal election ballots. But
at least the business had finally been transacted; two and a-half
hours round trip, all tolled.

Valery Anderson’s experience during the same election was also not
impressive. An official read her the candidates names, but only
which party they belonged to after she pointed out that sighted
voters had access to that information when they voted. A friend
was present who was willing to assist but, unaccountably, he was
not allowed to.

VAlery is a member of the London regional Ontarians with
Disabilities Act Committee, which made a point of connecting the
issue around that legislation with the treatment of voters with
disabilities during the recent election. The way their message
came across is something like, “if you want to know how serious
the Harris government is about the ODA, then get a load of the off-
hand way we’re being treated as voters in this election.”
Obviously, this government’s version of an ODA has little to do
with moving disabled Ontarians any closer to being a part of “the
broader masses.”

EQUAL TREATMENT School board agrees to provide information to blind parents

Editors Note: This article was written in 1992 but 20 years later our son is having to cope with the same issues. When will educators learn to respect the human rights of people who are blind?

EQUAL TREATMENT School board agrees to provide information to blind parents
One principal told us: It’s your responsibility to read what we give you.
By Angela Manglacasale
Citizen writer
Chris and Marie Stark wanted to be involved in their children’s education. But it took a complaint to the Ontario Human rights Commission to force a local school board to make it possible.
The Starks are blind. Their children are sighted.
For years, the children had to read aloud to their parents any notices, report cards and other school materials they brought home. The Starks asked teachers, principals and school officials to provide some of the material in a form they could understand without having to rely on their children.
“They didn’t understand what it’s like for a 10- or 12-year-old child to try to read a report card that they themselves are nervous about,” said Marie, a federal civil servant. “It was very a traumatic and distressing situation for all of us.
“One principal told us: ‘It’s your responsibility to read what we give you.’ That’s like saying ‘Flip a switch and see,’ ” said Chris, also a federal civil servant.
Now, as part of a human rights settlement, the Carleton Board of Education has agreed to provide information to visually impaired people in the form of audio tape, braille or large print.
The board has promised to provide
material, including report cards, notices
and newsletters, to the Starks at the same time it is sent to other parents. Also, the board will notify them every three months about school administrative issues, new publications and adult education matters. The board has promised to provide copies of these materials within 10 days of their request.
“This is a significant agreement on the part of a major school board,” said Fran Endicott, chief commissioner with the Ontario Human Rights Commission. “It is a clear recognition of the fact that persons with disabilities are entitled to the same treatment as the rest of the population and that such accommodation must be provided in a waythat respects their dignity.”
The Starks praised the board for coming to an amicable settlement, although it comes a little late for Daniel Stark, 18, who will graduate from Gloucester High School this year. His sister, Chantal, 14, will start high school next year.
The Starks, who live in Orleans, said they reluctantly pressed their case as far as the human rights commission so other families would not have to fight the same battle. As guide-dog users, they were conscious that others had fought so they could have the right to bring their dogs into public places.
The cost of providing this kind of material is about $1,200 to $1,500 per child, said board superintendent John Beatty.
The Carleton Board of Education believes in the importance of effective two-way communication within its system, with parents and the general public. Effective communication with parents/guardians with respect to the program and progress of individual students is considered essential.
1 The Board will make every effort to ensure that parents’ communication needs regarding their child’s educational programs are met in an effective and timely manner.
2. While most communication with parents will be in English through print material, interviews, etc., other methods of comniunication such as braille, signage for the deaf, large print, audio tapes, and translation/interpretation of other languages will be made available upon request.
3. Every effort will be made to ensure that parents who request communication in an alternate format are provided with information regarding their child’s education at the same time as other parents receive this information.
4. Parents with disabilities will be provided with access to other Board publications upon request, in a
format suitable to their needs.
5. The Board will maintain a communications strategy to inform and encourage people with disabilities to
use these alternate forms of communication.
6. The Director of Education will ensure that every reasonable effort is made to access community resources,
either voluntary or profesnional, to ensure effective communication with parents.
7. The Director of Education is authorizzd to establish procedures to support this policy.
ISSUED: 1989 REVISED: 1993
AUTHORITY: Board Minute: 469-89; 37-93
POLICY CO-ORDINATOR Su.?( .interident of School Operations
THE CARLETON BOARD OF EDUCATION

SECTION K: SCHOOL/COMMUNITY/HOME RELATIONS CODE
SUBSECTION KB: PARENTAL INVOLVEMENT IN EDUCATION KBDA
POLICY COMMUNICATION WITH PARENTS USING
ALTERNATIVE FORMATS

Legal group takes on phone firms over lack of accessibility

Legal group takes on phone firms over lack of accessibility

HELEN HENDERSON

(Extracts from an article published in Fall 2003)
ARCH: A Legal Resource Centre for Persons with Disabilities has been gathering information for more than 20 years. It’s about to formally open a library housing a wealth of information on everything from human rights and employment to accessibility.

It’s also in the midst of a David-and-Goliath battle, pitting a blind couple against major telecommunications giants like Bell Canada and Telus. The outcome could affect the way all of us use telephone products in future, so it’s a good time to start paying attention.

ARCH, which started in 1980 as the Advocacy Resource Centre for the Handicapped, specializes in precedent-setting cases. At issue in the battle over telephone equipment is whether the Canadian Radio-television and Telecommunications Commission (CRTC) should regulate it and, if so, what kind of regulations are needed to make sure people with disabilities can use it easily.

Think about the rapidly growing array of telephones, electronic message pads, hand-held computers and the like. They have thousands of applications that rely on visual acuity and manual dexterity. If your fingers have difficulty pinpointing targets, how do you master a tiny, cramped keyboard?

If you are blind and there’s no uniformity in the way keys are placed, how do you know whether you’re pushing “hold” or “redial”? And what use is call display for screening calls?

Chris and Marie Stark, an Ottawa couple, have fought long and hard to help those with so-called perfect vision see the other side of the coin.

Because of the Starks and other pioneering advocates, banks have tried to make automatic teller machines more accessible to people with disabilities. But the marketers of telephone equipment haven’t been so accommodating.

The technology exists to use audio instead of visual cues. And it’s not difficult to manufacture raised symbols that can be identified by touch. But Canadian marketers have chosen, by and large, to ignore accessibility issues.

The Starks note that phone keypad layouts are not consistent and function keys are seldom at the same place, even on different models from the same manufacturer.

“The most frustrating thing about this issue is that all the equipment is new,” says Marie Stark. “It was developed without considering the needs of people who are blind. Operation without sight thus becomes an after-the-fact retrofit, rather than a design element to ensure that the terminal is usable by as many people as possible.”

The Starks initially took their complaint to the Canadian Human Rights Commission. It referred the issue to the CRTC.

The Ottawa couple hopes regulation by the commission would, among other things, force manufacturers to build in accommodation for customers who are blind. ARCH has joined the battle, hoping to get the commission to recognize the needs of all people with disabilities.

“The goal is to improve the quality of life for others,” says Stark. And that includes able-bodied people.

Take car cellphones, for example. A driver who has to reach out and press buttons to make a phone call does not have both hands on the wheel. If phone numbers could be reached by giving voice commands, it would be safer and more convenient for everyone, Stark points out. The CRTC suspended proceedings on the issue, saying it wants more time to do research on the accessibility of telephone equipment.
register@ami.ca

Hearing on Accessible Telecommunications and Broadcasting

Hearing on Accessible Telecommunications and Broadcasting at the CRTC
by Lana Kerzner, Staff Lawyer

Telephones and televisions are essential forms of communication that allow us to work, go to school, call for help in an emergency and participate in community life. However, many people with disabilities cannot participate in these activities because telephones and t.v. programming are not accessible to them. For example, the buttons on cell phones may be too small and their screens may be inaccessible for people with visual disabilities. People with cognitive disabilities or disabilities that affect their speech may not be able to get customer service because of voice activation features which they cannot use. Often people who are deaf or blind cannot easily watch t.v. The captioning of programs used by people who are deaf is unsatisfactory and people who are blind do not have access to the audio description they need to access information.

However, there is now some hope for advancement in relation to accessible telecommunications and broadcasting. November, 2008 was a historic month for the disability community in this regard. The Canadian Radio-television and Telecommunications Commission (CRTC), for the first time, held a six day hearing in Gatineau, Quebec to specifically address unresolved issues related to the accessibility of telecommunications and broadcasting services to people with disabilities.

The hearing provided a good opportunity for the disability community to express their views. It was a unique hearing for the CRTC in that special attention was paid to making it accessible for people with disabilities. ASL and LSQ interpretation was available throughout the hearing. French and English captioning were available in the hearing room as well as on the CRTC website. The hearing room was accessible for wheelchair users and CRTC staff were available throughout the hearing to assist with disability-related needs. The Commissioners on the panel at the hearing asked many questions in a genuine attempt to understand the concerns and perspectives of the disability community.

This hearing was particularly welcome because, notwithstanding the efforts over the past several years of ARCH and other disability organizations and people with disabilities, disability issues have largely been addressed by the CRTC in a piecemeal fashion. The CRTC had not taken its own initiative to systemically and proactively resolve the many barriers that exist. Rather they have dealt with limited, discrete concerns: Charges for TTY long distance calls and alternate format billings, for example, have been addressed in separate cases. Many other concerns, such as inaccessible cell phones, have been left unresolved.

The disability community was broadly represented at the hearing. Long time advocates, Chris and Marie Stark, and Henry Vlug made presentations, as well as several disability groups, including, the CNIB, Neil Squire Society, Canadian Association of the Deaf, Alliance for Equality of Blind Canadians, Council of Canadians with Disabilities, Canadian Hearing Society, Centre quebecois de la deficience auditive and Regroupement des aveugles et amblyopes du Quebec. The presenters documented the experiences of their communities, the changes they desire and the ways in which they see this being achieved. As a whole, it was apparent that the presentations moved the Commissioners to a much deeper understanding of the barriers people with disabilities face, and the solutions that the community believes to be necessary.

Some general and essential recommendations were echoed by several groups. These include:

* The CRTC must see this proceeding as the beginning of an ongoing and perpetual systemic approach to addressing accessibility issues.
* A Disability Unit with an understanding of disability issues and technical expertise must be established within the CRTC.
* Consultation with people with disabilities and disability organizations is essential.
* A user-friendly mechanism must exist for people with disabilities to raise concerns.
* The CRTC must require service providers, both broadcasters and telephone companies, to ensure that their products and services are accessible for people with disabilities. Service providers have not, and will not, take action unless they are told to do so.

In addition to these broad recommendations, many detailed recommendations were made, such as the need for a national video relay service which allows people who are deaf to communicate using sign language with voice telephone users through video equipment; concerns about emergency notices on t.v. which are in print only with no voice component for people who are blind; concerns about captioning of television broadcasts and inaccessibility of cell phones.

ARCH’s presentation focussed primarily on telecommunications because of our expertise in this area. We supported the recommendations of the disability community and grounded our submissions in some fundamental realities about the community. Our submissions stressed the importance that the CRTC apply a cross-disability perspective, as well as one that ensures affordability of products and services and takes into account the many people with disabilities who live in poverty. We argued that the CRTC must take action to require that products and services are accessible and that in moving forward on accessibility, a disability unit within the CRTC must be established.

We supported our submissions with a disability law analysis to the statutory obligations that exist in relation to telecommunications. We argued that anti-discrimination and equality rights laws and principles apply to the entitlement of people with disabilities to accessible telecommunications. In particular, we articulated the applicability of human rights obligations and the Canadian Charter of Rights and Freedoms to the CRTC’s considerations of accessibility issues.

In addition to the November hearing, much of this proceeding has taken the form of written submissions. These include initial comments and responses to questions posed by the CRTC. Each party has an opportunity to submit final reply comments by January 12, 2009. The CRTC’s decision will be issued after this date, although we do not know when and cannot speculate what the CRTC will decide. In the words of Chris Stark, we are hoping that the Commission scores a home run.

The proceeding is referred to as: Broadcasting Notice of Public Hearing CRTC 2008-8 Telecom Public Notice CRTC 2008-8. More information can be accessed on the CRTC website and the transcripts, which are a verbatim record of everything that was said by each of the parties at the hearing, can be accessed at
http://www.crtc.gc.ca/eng/transcripts/2008/index.htm#tt1117. ARCH’s submissions in this proceeding can be accessed on our website at http://www.archdisabilitylaw.ca/publications/submissions.asp

This proceeding is just one step in the process towards accessible telecommunications and broadcasting. We are hoping that it marks the beginning of a new era at the CRTC, one in which people with disabilities are active players along with the CRTC and industry, and the CRTC takes proactive, systemic and informed measures in addressing accessibility.

Braille Telephone Bills

phone bills give blind more independence: Needing others to read statements reduces privacy, woman says
BYLINE Lisa Gregoire, Journal Staff Writer

About 600 words and just as many numbers. Fine print,
graphics, charts, dates and explanations. That’s your monthly phone bill. But say your eyesight was failing. How would you read it?

Two months ago, the Canadian Radio-television and
Telecommunications Commission (CRTC) forced phone companies and their subsidiaries to provide bills in braille, large print or
electronic format for the visually impaired. The CRTC ruled on a
case launched by a middle-aged blind man from Ottawa more than five years ago.

With so many companies offering competitive long distance and
cellular packages, the regulatory body deemed it unjust
discrimination to deny blind customers the necessary tools to make
informed consumer choices.

And not a moment too soon, said CRTC spokesperson Campbell Laidlaw. Canada’s aging population will increasingly need help to read all that small print.

“Its implications were and remain quite profound,” said Laidlaw,
director of consumer policy. “It and subsequent rulings are
indicative of the awareness of people who are disabled that not only do they have rights they can exercise, but technology abounds to
meet their requirements.”

Edmonton physiotherapist Janet Brandly has been blind since birth and recalled, as a university student, having to hire someone with sight to read through her mail once a week. A confessed control
freak, Brandly resented someone else going through her bills and she couldn’t always be sure every word was read.

“It comes down to the privacy issue. As blind people, we have to
give up a lot of privacy that sighted people don’t. Even something
as simple as the mail,” said Brandly, whose sighted husband reads
through the bills. “I think the principle of billing in alternative
format is long overdue. We just have to make sure it’s handled
properly.”

* That means privacy again. If companies contract out braille
services, third parties have access to people’s private information.
“There must be a clause, a safety net built in there to protect
information,” she said.

Telus spokesperson Nick Culo said Telus has been providing
alternative billing for the visually impaired for about four years.
The latest CRTC ruling requires major carriers such as Telus and
Bell to ensure its long distance resellers, such as Sears or
Zellers, provide the same billing options on demand.

Right now, about 1,200 Alberta and British Columbia customers get
* their bills in large type, 50 get braille bills and 20 receive
electronic diskettes which run off expensive software to vocalize
text for users.

Telus electronically transfers billing information to the Canadian
National Institute for the Blind which then transforms them into the preferred braille or electronic format and mails them to customers. All Telus privacy rules and regulations apply to CNIB staff, Culo said, and customers sign a waiver permitting their bills be handled by a third party. It costs Telus $20 for each braille or electronic bill. Large print bills are produced in-house.

Chris Stark and his wife, Marie, launched a series of complaints
against Bell Canada in 1997 which led to a host of new CRTC rules
favouring the blind.

“It ain’t charity and it ain’t perks and it ain’t something
special. It’s the cost of doing business as the population greys,”
said 54-year-old Stark from his home near Ottawa. “It’s a mark of
our independence to read a bill and see a rate change and a service
charge and understand it. You can’t make a choice on what’s best for you if you can’t read the information.”

CNIB has about 9,000 clients in Alberta, two thirds of whom are 65
years old or older. Nearly half of all clients have macular
degeneration — blurry central vision which affects mostly the
elderly. Only about five per cent of blind people are proficient in
* braille.
———-
Lisa Gregoire
the Edmonton Journal

Ready, Aim, FIRE!:

Ready, Aim, FIRE!

 

Note to readers  Real time research is the best approach since time will pass by this snapshot in time.

Introduction:

Recently, I have been asked to monitor my blood glucose level.  This article outlines the research that I undertook, and what I found out about the two glucose monitors for measuring sugar in the blood, the Oracle and the Prodigy, which I have evaluated for potential use.

 

I am by no means an expert in this field. There are persons who are blind who know a lot more than I do on this subject. As a first step, I spoke with a number of people who are blind.  I received a great deal of useful and practical advice.  I strongly suggest that anyone wanting to learn about this matter consult persons who are blind who use glucose monitors.

 

Here are a few resources I found along my learning journey, which may be of assistance, and may save some frustration.  Finding information about products that can be used by persons who are blind is not always easy.

 

The Canadian Diabetes Care Guide website was helpful in learning about the monitoring of blood glucose.  Below is the link to the sites homepage as well as a direct link to the monitoring blood glucose page.

Homepage:

www.diabetescareguide.com

 

Canadian Diabetes Care Guide Link to Monitoring Blood Glucose Page:

www.diabetescareguide.com/en/monitoring.html

 

Canadian Diabetes Care Guide

Phone Number:

416-690-4871

 

Mailing Address:

Sampling Canada

33 Wheeler Avenue

Toronto, ON

M4L 3V3

 

The measurements for glucose levels in Canada changed in 1967, while the United   States continues with imperial measurements, using milligrams/deciliter, as we used to, and we began to measure in Millimoles/Litre.  I believe the conversion is to multiply by 18, not difficult, but a needless “pain in the neck and makes the thought process more of a challenge if you are dealing with a physician who is younger than I am!!! However, there should be no need for this, as I know the Oracle is metric, and I believe the Accu-check is also compatible with the voice box as well as the Voice, Prodigy. If you are converting check the conversion factor with a medical professional first.

 

When looking at glucose readings, it is patterns and trends that are important, not an occasional reading that is out of the ordinary.

 

NormalRange of Glucose

Before Meals: 4-6 mmol/L

2 hours after a meal (from the time you started): 5-8 mmol/L

 

Target

Before Meals: 4-7 mmol/L

2 hours after: 5-10 mmol/L

 

An article I found particularly useful was published by the National Federation of the Blind (NFB) in the United States.  It is entitled “Evaluating Glucose Meters: Talk is Cheap, But Access is Golden”.  It can be found at the following web link:

http://www.nfb.org/images/nfb/Publications/vod/vod_24_1/vodwin0910.htm

 

The article mentions that in 1997,  the NFB called on meter manufacturers to make their meters speech accessible. Since then, and especially in the past few years, a number of talking blood glucose meters have been introduced. These new meters are smaller, faster, and much less expensive than older choices, require only a tiny drop of blood, and are easier to use. However, buyer beware! While these meters are being aggressively marketed to blind and low vision users, only the Prodigy Voice is totally accessible. Despite the hype, you will find that you need sighted assistance to use essential functions such as time and date, and memory review on many of these products.

 

With advances in technology, adding speech to a meter can be accomplished at a low cost—talk is cheap. And more talking meters means more choices for people with visual impairment or for those who appreciate multi-sensory testing. However, manufacturers need to realize that adding limited audio to a meter may

meet the needs of some people with minimal vision loss, but it is not adequate or appropriate for people with moderate or severe vision loss. They need

spoken access to all meter operations to ensure independent use—access is truly golden.”

 

Another article from the NFB, is entitled “The Talking Blood Glucose Monitor Revolution” at the following web link:

www.nfb.org/Images/nfb/Publications/vod/vod215/vodwin0707.htm –

 

It describes the two varieties of talking blood glucose monitors.  The first uses a standard off-the-shelf, blood glucose monitor and adds a piece of hardware which converts the displayed text on the screen to audible speech, such as the Roche Diagnostics Accu-Check VoiceMate.  These are generally more expensive and more bulky.  The newer varieties fall into the second group, such as the Prodigy Voice, and the Oracle. They have speech built directly into the monitors; no additional mechanism is required. This makes them much more convenient to carry when you’re on the go.

 

There are now several choices for talking glucose monitors, including Prodigy Voice, Prodigy Autocode, Oracle, Advocate, Redi-code, Companion, Embrace, Clever-Chek, Smartest Smart Talk, and the Accu-check VoiceMate

 

I have been trying two of these – the Prodigy Voice and the Oracle.  Here is some additional information on these two devices.

 

1. Prodigy Voice:

 

Prodigy Glucose Meter Contact Information

Toll Free Phone Number: 1-800-366-5901

 

Mailing Address:

Diagnostic Devices, Inc.

9300 Harris Corners Parkway

Suite 450

Charlotte, NC28269

 

Email: intlsales@prodigymeter.com

 

Prodigy Glucose Meter web links

Link to the US website:

www.prodigymeter.com

 

The Prodigy Voice and other Blood Glucose Monitors, lancer and test strips can be purchased at:

Maxi-Aids – Products for independent Living

www.maxiaids.com

Toll-free: 1-800-522-6294 TTY: 1-800-281-3555  Fax: 631-752-0689

Item#: 151900

Your Price: $84.95

 

Future Aids – the Braille Superstore.

www.braillebookstore.com

Email: sales@FutureAids.com

Toll Free: 1-800-987-1231

Item Number: 2973

Title: Prodigy Voice Kit

Talking Blood Glucose Monitoring Kit for the Blind

Price: $74.95 But I was told that they can not sell it yet because it is not approved for use in Canada and assured me that approval was pending.

 

PRODIGY VOICE – The Talking Blood Glucose Monitoring System

“Total Independence for the Blind Diabetic”

 

• Audible test results in only 6 seconds

• Audible instructions and meter status

• Tactile buttons for easy identification of functions

• Auto Turn-on – just insert a test strip

 

Prodigy Complete Starter Kit includes everything you need to start testing! Glucose meter, control solution, 10 Prodigy™ strips, 10 sterile lancets, lancing

device.

 

Audible blood glucose monitoring system specially designed for the blind. The updated features were developed with the help of National Blind Associations

and Certified Diabetes Educators.

 

Audible prompts talk the user through all set-ups, step-by-step, including audible test results, meter status, averages, and memory records with date and

time.

 

Easy-to-identify buttons have raised tactile markings, including directional arrows and letters to allow the blind user to easily locate and operate them.

 

For greater comfort, Prodigy® Voice offers you the option to test with blood from your palms, forearms, upper-arms, thighs and calves, which have fewer

nerve endings than your fingertips.

 

Smaller Blood Sample Required – requires only a 0.6 micro liter drop of blood – smaller than most meters available today. This allows you to use extra

fine gauge lancets and significantly reduce your pain and discomfort.

 

Audible Memory and Data Management stores up to 450 audible test results with date and time, and gives 7, 14, 21, 28, 60, and 90-day audible averages.

 

Prodigy’s FREE software allows simple downloading of test results to your computer helping you and your Diabetes healthcare professional to track changes

in your blood glucose level over time.

 

REPEAT button allows the user to check and hear the last message or test result. No coding necessary – simply insert the test strip and the meter turns

on automatically. You get safe accurate test results every time. Eject Button safely ejects the used test strip with a push upward. Built-in earphone jack

for privacy (earphone not included.) Powered by 2 AAA Batteries (Included.) Size: 3.5 in. L × 2 in. W × 0.81 in. D. Weight: 1.86 lbs. 1-Yr. Limited Mfg.

Warranty.

 

2. The Oracle Talking Blood Glucose Monitor

 

Contact Information

Toll Free: 1-866-829-7926

 

Mailing Address:

Tremblay Harrison Inc.

1684   Dufferin St.

Toronto, ONM6H 3M1

 

Email: info@oraclediabetes.com

 

Website: www.oraclediabetes.com

 

Information from their website.

 

The Oracle Glucose Monitor is the ultimate in home blood glucose monitoring.  It combines simple operation with the most advanced features available.

 

Your Oracle Glucose Monitor has ALL these features ;

•           Talking Function – either English or French

•  No Coding

•  Alternate Site Testing; allows sites other than your fingertips for testing.

•  Tiny Blood Volume

•  Simple Single Button Operation

•  7 Second Results

•  450 Memory events; Keeps track of date and time with 7,14, 21, 30, 60, and 90 day averaging

•  Computer Downloadability (Computer download cable is sold separately)

•  You or your health care professional can download your results to a computer

•  Ketone Warning

•  Automatically comes on when your blood glucose is above 14.3 mmol/L

 

EZ Health® Oracle Test Strips ;

 

EZ Health Oracle Test Strips come in boxes of 50 or 100 for your convenience.  There is no need for coding or calibration of any kind.  Your meter automatically turns on when you insert a strip and automatically turns off after use.

 

There is a website to download audio versions of manuals for the Oracle Blood Glucose Monitor, and how to use the test strips, lancets etc.

www.oraclediabetes.com/index-7.html

 

Analysis:

There are basically three activities involved in monitoring your blood sugar level: pricking the skin with a lancet from an applicator; Getting some blood, putting it on the strip; and having the machine read it to you.

 

Also, in my case, the doctors want to see the record of readings.  Both the Oracle and Prodigy come with software to install on a computer to record the readings.  They both have internal memories which keeps track of about 400 plus readings.

The Oracle software is not accessible without using a mouse.  The Prodigy software is suppose to be accessible, but it was being updated, at time of writing.  They did acknowledge that the software would be reviewed by people who are blind to make sure it continues to be usable.  Both the Oracle and the Prodigy come with manuals in audio format.  The Prodigy sends a c.d. containing the manual, while you have to go to the Oracle website and download their audible instruction manual.  The Oracle manual was not as professionally done as the Prodigy’s manual.

 

Although they were both adequate, the Prodigy manual contained a chapter on carrying out the process, as a person who is blind.  These tips were useful to me.  It would appear that it doesn’t matter what lancet device and lancets you use for pricking the finger.  The local pharmacy gave me one with a drum of ten needles in it, but I don’t like it because of the difficulty in knowing how many needles are left in each drum.

 

Both the Oracle and the Prodigy come with lancets and lancet devices.  You can also get a box of universal lancets, which fits most lancing devices.  The strips used for each device, though, are specific to that device.  Once you decide on which device to use, then the correct strips have to be purchased.  The devices are usually obtainable free or at a very low cost, but the test strips are another matter.  They are fairly expensive.  In the Prodigy’s case, there are strips available for the audio device and the Prodigy Autocode.  The Prodigy I use requires the Prodigy Voice strips.

 

I personally find the Prodigy to be more user friendly.  The strips are easier to get blood onto, and to get a reading from.  The review function and the settings functions are totally accessible.  While I can control the Prodigy, the Oracle says that sighted help will be required to alter the settings on the device and to read the history of results.  The down side of all of this is that in my province, neither device is available, and the strips have yet to be approved for use.  Therefore you have to order either device from a supplier.  In the case of the prodigy, you can order it from several places in the United States.  They will ship it as “Medical Supplies for the Blind” and they go right through customs.  However, you should check on the customs regulations first.

 

Customs Canada Contact Information:

Service in English: 1-800-461-9999

Service in French: 1-800-959-2036

Email: CBSA-ASFC@canada.gc.ca

Business Hours: Monday – Friday, 8:00 to 16:00

 

Several other talking blood glucose monitors are also available, but I have not tested them.  MaxiAids sells a new one called the Embrace, which they describe as follows:

 

NEW! Embrace Talking Blood Glucose Monitoring System: Bilingual English/Spanish

“Announces Results in Only 6 Seconds”

 

Item#: 150201

Your Price: $24.95

• Announces results in English or Spanish in 6 seconds

• Voice guidance through entire test process

• Small sample & alternate site testing reduces pain

• Uses 2 AAA batteries (included)

• Includes lancing device, lancets and carry case

 

The Embrace Talking Blood Glucose Monitoring System was designed to deliver an accurate reading of your blood glucose level in 6 seconds. You may have test results announced in either English or Spanish. Plus, this model provides maximum accessibility to blind and low vision users by offering voice guidance to talk you through the testing procedure. (Note: The talking feature can be turned off if not wanted.)

 

Embrace requires a smaller blood sample and offers alternate site testing (fingertip, palm or forearm), so you can expect faster, easier testing with less

pain. Uses 2 AAA batteries (included.) Portable, lightweight meter weighs only 2.3 oz. with batteries installed. Color: Grey. Manufacturer’s Limited Lifetime

Warranty.

 

Other Features:

– Stores 300 test results with date and time stamp.

– 7,14 and 30-day averaging and test results can be downloaded to your PC via USB connection and available software.

– Large display makes seeing results easier

– Auto power off after 2 minutes preserves battery life

 

Package includes:

Meter

Lancing device

Ten lancets

Quick reference guide

Instructions in both English and Spanish

Log Book

2 AAA batteries installed

Zippered storage/carrying case

 

Product dimensions (imperial): 0.78 inch H x 3.90 inch L x 2.11 inch W

Product dimensions (metric): 20 mm H x 100 mm L x 54 mm W

 

NEW! Embrace Blood Glucose Test Strips: 50 Strips

“Use with Embrace Blood Glucose Systems”

Item#: 152010

Your Price: $15.95

 

These Embrace Blood Glucose Test Strips are for use only with Embrace Blood Glucose Systems. Package contains 50 Test Strips.

 

There are also a number of glucose monitors available with large print, but I did not look at them, as they would not meet my needs.

 

For a newbie like me, it is quite challenging to get a handle on the process. Particularly for me, I found it challenging in telling if I’ve punctured the skin to get enough blood.  As the Prodigy manual says, “Don’t give up, keep trying and practice, practice, practice.”  It is the approach to be used.

 

The surprising thing to me was the lack of locally available, useful information.  Diabetic organizations and most pharmacies had no information for people who are blind.  The only device that they knew about and could get was ten-year-old technology, the Accu-Check VoiceMate, in which the audio is an add-on, and it is the most expensive of them all, costing $400-$500.

 

Accu-Chek Contact Information

Toll Free Phone Number: 1-800-363-7949

 

Mailing Address:

201 Armand Frappier

LavalleQCH7V 4A2

 

Website: www.accu-chek.ca

 

The information abyss is what has motivated me to write these few thoughts, outlining my impressions and experiences as a newbie, hoping to help others who find themselves in a similar situation.

 

 

Empowerment, self-advocacy voting, elections and people who are blind, shopping and blindness, access to information  for people who are blind, consumers who are blind, disability,,rights, self help health care when you are blind, medications    and blindness, health care and blindness,

An Unhealthy Medical Environment in Ontario

An Unhealthy Medical  Environment in Ontario

 

As I age, it is difficult to do so with dignity.  The health needs expand and become more complex, but the available information – in usable formats – decreases seemingly in direct proportion to needs.

 

The provision of multiple formats seems to have undergone a metamorphosis.  It is no longer easily available and no longer produced in a usable way.  Recently, I had a Canada Pension Plan (CPP) form sent to me.  It took six months to get it.  It was simply a translation of the print form with Canada’s two official languages all jumbled together, and filling it out was impossible.  One of the forms they offer is a survivor’s benefit form, which CPP recommends you fill out immediately.  But if you are a person who is blind, I guess immediately means after you’re long gone.  Health Canada and the Provincial Ministry of Health are particularly bad when it comes to informing people who are blind in formats we can use.

 

When you pick your medicines up at the pharmacy, all the health education materials are available in print only, and the medicines have no tactile markings.  You can’t get an electronic summary from the pharmacist.  Granted, now in Ontario you can have half an hour consultation with the pharmacist, however, in my view this is of limited value because you go away with nothing to have as a reference about some very complicated discussions, such as the effects of medicines, etc.

 

I now use blister packs in a little cardboard holder.  Each has seven days worth of medicines in the right pouches , for the right time, starting on the left with the first dosage of the day in the morning.  It would seem that you’re on your own.  Searching through Google is a great resource.  Talking blood pressure monitors, talking blood glucose monitors and talking thermometers are helpful.  Some of the health material you can scan.  It is however upsetting to know that your tax dollars have paid to inform sighted people, but not you as a taxpayer who is blind.

 

If you have to watch the contents of food, such as the amount of salt, then you are out of luck. All the packaging is not accessible, and the ingredients are only presented in Print. Health Canada and its Agencies require product manufacturers to list ingredients in products on their packaging. However, Health Canada obstinately refuses to make it possible for people who are blind to get access to this information.  The Health Canada regulations are exclusionary and the human rights authorities play the jurisdictional game – It is provincial jurisdiction, or is it federal jurisdiction? So Health Canada can continue to adversely harm the health of people who are blind.

 

I thought it was appropriate to review some of the basic principles of multiple formats and provide some resources.

Multiple formats are not translations.  They are descriptive processes where charts, graphs and diagrams are interpreted.  Multiple formats have separate versions in the English and French languages.


Multiple Format Checklist

 

This checklist is an abbreviated form of the more detailed “Manager’s Guide to Multiple Formats” and its accompanying appendix of resources, produced through the Assistive Devices Industry Office of Industry Canada for the Government of Canada.

 

All Canadians have the right to public information in a format they can access. This right is protected by the Canadian Charter of Rights and Freedoms and other federal legislation.

 

The Government of Canada Communications Policy requires that public information be made available in multiple formats (formats other than traditional publishing) for access by people with disabilities.

 

Making publications available so they can be accessed by as many people as possible not only conforms with laws and policies, it’s also good customer service.

 

Today’s aging population, explosion in information technologies and increasingly diverse society have left the printed page as only one of many ways to deliver information.

 

Different Methods of Publishing

 

This checklist examines some of the more commonly used formats and communications methods used in today’s society.

 

Accessible Web Sites: Some people who are blind or have low vision use “screen reading” software that can convert written text on web sites into other formats they can access, such as audio or braille. However, the screen reading technology cannot interpret graphics or text that appears in graphical form. For this reason, web sites need to be made accessible by ensuring that all visual and multi-media components are available in text.

 

A number of measures to make federal web sites accessible are mandatory under the Government of Canada’s Common Look and Feel Policy.

 

Audio: Publications produced on cassette tape, c.d., or computer MP3 files are appropriate when the print version cannot be accessed. A professional narrator reads the text navigated by users through tone indexing that marks new sections.  Today the best standard to use is the DAISY 4 standard.

 

Computer Diskettes and other portable electronic storage methods: For people who cannot be sent publications in electronic format via e-mail or over the web, diskettes may be a solution. There are a range of storage formats including CDs, DVDs and ZIP disks.

 

Braille: Braille is a reading system of raised dots. Named after its inventor, Louis Braille, the system’s basic “braille cell” consists of six dots grouped in two vertical columns of three dots each. There is English Braille and French Braille. Grade 1 Braille is the most basic representation of letters, numbers and punctuation while Grade 2 combines approximately 300 contractions and is the most commonly used.

 

Described Video: Described video, also known as audio description, has all relevant action scenes and on-screen text (such as credits) in a video, TV program, web-based multimedia or movie described and read by a narrator. Described video can be “open” or “closed”. When “open,” the descriptive audio can be heard by all viewers. When “closed,” viewers must turn on the TV set Second Audio Program (S.A.P., also known as the second audio channel for stereo broadcasting) for access.

 

E-Text: E-text, or electronic text, refers to publications in which all graphical components, including relevant photographs, charts and illustrations, are fully explained in text and stored electronically for distribution by e-mail, web page or diskette.  

 

Large Print: Large print publications use a set of guidelines that improve readability beyond standard design and formatting. This includes a larger point size for characters – 16 points is recommended – plus the use of non-serif fonts, increased spacing and improved contrast. The aging trend means that more people than ever before have low vision and require large print.  For this reason, it may be practical to have the original publication produced in large print.

 

On-Screen Text: On-screen text converts the spoken word and other audio contained in videos, TV programs, web-based multi-media and movies to text. The text can be in the form of subtitles used to communicate the spoken word in a different language or in the form of captioning for people unable to access audio. Closed captioning is seen with a decoder while Open captioning is visible without a decoder.

 

SignWriting: “SignWriting” is a writing system using visual symbols to represent the handshapes, movements and facial expressions of American Sign Language, Langue des Signes Québecoise and other signed languages. SignWriting is currently used mainly to teach signs and signed language grammar to beginning signers. It is also increasingly used as an alternative to standard text in teaching grade school students whose command of sign language is greater than that of printed English or French.

 

How to Prepare for Multiple Formats

 

Use Plain Language: Keeping your text as clear and as easy to read as possible is not only beneficial for clients with learning disabilities and low literacy skills, it improves comprehension for all clients and will make adaptation to other formats easier.

 

Produce a Full-Text Template: At the same time a published product is developed, all of the graphical and multi-media elements should be fully explained in text by the original authors. This file is known as the “full-text template” from which multiple formats can be produced in an accurate and seamless way. The template is a multiple format in itself, representing e-text that can be used for distribution.

 

Adjust Budgets: Use a cost-effective approach that includes multiple formats according to demand. In some circumstances, it may be appropriate to combine two formats into one. For example, a print product could be produced as large print.

 

Produce upon Request: Using the full-text template, produce multiple formats upon request. There is an obligation to provide publications in a format clients can access.

 

Inform everyone in the publishing process: Share this guide with everyone involved in the development and distribution of publications including front office people, authors and editors, graphic designers, webmasters, project managers, communications people and order desks. Inform both staff and outside contractors.

 

How to Price, Promote and Accept Multiple Format Requests:

 

All formats priced the same: All formats of an information product must have the same price. Similarly, if the conventional product is free, so too must be all of its multiple format equivalents.

 

Promote availability: There are a number of ways you can promote the availability of multiple formats. Use varied media including radio and the web; register with 1 800 O-Canada (1-800-622-6232); advertise with radio reading services; and include a message on all products, such as “This publication is available upon request in accessible formats.” The message can be produced in Braille and large print.

 

Accepting requests: Multiple format requests should be accepted at all the same order points as conventional products, including product catalogues, toll-free numbers and web sites. Ask clients what format they require for access. In some cases, a full-text electronic version can be e-mailed if the client has e-mail access. Avoid referring all clients to the web as a one-stop solution because, as popular as the web has become, not all clients have web access or the ability to properly navigate the web. Also, be prepared to accept requests that come in via a multiple format.

 

Summary Checklist:

Have webmasters follow the Common Look and Feel (CLF) Policy. See the CLF web site at:

http://www.cio-dpi.gc.ca/clf-upe/

 

Promote the availability of all publications in multiple formats.

 

Familiarize all order desks with multiple formats and prepare them for requests. Inform them that there is an obligation to provide information in a format clients can access.

Create a full-text template for all publications as publications are first developed.

Have a full-text template produced for all existing publications that are promoted and considered popular.

Provide full-text templates to multiple format suppliers to produce formats as they are requested. The templates are also a multiple format in themselves and can be sent to clients via e-mail or diskette, as appropriate.

For More Information:

 

For more details, consult the “Manager’s Guide to Multiple Formats” and its accompanying appendix of references.

 

Web Link:

www.collectionscanada.gc.ca/the-public/003/005003-4200-e.html

 

 

It seems to me that very little attention is being paid to the availability of multiple formats by various services both public and private.  As shown by the above, the information is available, and the how-to knowledge exists, yet most websites only offer downloads in PDF.  I had to deal with the frustration of Service Canada telling me to call the originating department for a multiple format publication that they would send the general public directly from their office.  One can only wonder, does service mean making it harder for people who are blind to access information?  The call centre staff still do not know about multiple formats, and I had to tell them where on the web it said a brochure was available in DAISY format.  Before they read it for themselves, I was treated like a crack-pot.

 

I wanted to get a form from a Service Canada office.  They could tell me its street address, but not where it was in the building.  That particular building is a block long, and at least 30 or 40 businesses on the same floor.  Obviously there is no descriptive narration or wayfinding to help people who are blind find Service Canada service centres.

 

It seems to me that the low demand for multiple formats is in part due to the herculean effort required to get them.  They are not promoted.  It takes months to receive them, if at all, and they keep saying, “Well, it’s on the web.”

 

You would’ve thought that health professionals would be the most concerned and sensitive to these needs.  My experience is that the exact opposite is the reality, with one notable exception – a specialist who will dialogue with me via email. I also sometimes tell medical professionals how to block and copy material and send it to me electronically. When I have access to the information, I am in a stronger position to self  manage my health care.

 

There has to be a significant improvement in the flow of health related information to people who are blind by government agencies, practitioners and public education organizations like the Heart and Stroke Foundation. Telling people who are blind that they are a not for profit voluntary organizations is not a justification, but rather a sad commentary on their exclusionary attitudes.  This is just how I see the issue.

 

Chris Stark

 

 

ADVOCATING FOR ACCESS: Securing Our Rights by Speaking Up

Note to Readers

 

This article was written at the end of the 20th century. More than a decade later it is interesting to see the results.. It is evident that the access rights obtained have a short shelf life. Our son is fighting the same access to information struggle we thought had been resolved 20 years ago. Access to financial information is still problematic for persons who are blind and past agreements have been forgotten or ignored. Much progress has been made with telecommunications and broadcasting services but each change seems to start without access built in resulting in the same barriers arising time after time with the introduction of each new service enhancement.

 

Chris Stark

 

ADVOCATING FOR ACCESS

Securing Our Rights by Speaking Up

 

BY MARIE LAPORTE-STARK

 

Humans are creatures of habit. It is difficult, and quite often frustrating, to bring about change. And when services are finally made more accessible to consumers, organizations often take the credit without mentioning how the service improvements came about.

 

As a so-called  advocate,  I can give you the other side of the story.

 

Although my goal is usually to improve my own quality of life, it is certainly rewarding to know that changes I helped bring about have greatly benefited a lot of other people.

 

When I was a child growing up with blindness in the late  50s and early  60s, my parents were given the choice of keeping me at home without an education, or sending me to a school in Montréal for children who were blind. Access to information was not a problem at l Institut Nazareth. Braille was used in all written communications, including text books and exams.

 

My eyes were quickly opened to communication barriers when I ventured towards personal independence as a young adult moving to university. Volunteer readers had to be used to record textbooks, and they were not always reliable. Notes had to be borrowed from other students, who were not always present in class. Essays had to be typed on a portable typewriter. Each teacher had to be approached for oral exams and a description of charts and other materials on blackboards. These were my first steps towards standing up for my rights, towards advocacy.

 

A few years later, raising children illustrated to me in an even more tangible way just how important it is to have information. Knowing what my children were doing by the sounds they made meant that I could effectively manage their care without even being in the same room. My daughter points out that it was disconcerting to hear me tell her not to play with something when I was not even in the room!

 

Within the home, access to information was rarely a problem. The children made lots of noise, the kettle sang when the water was hot, I labelled the microwave controls in Braille, the television dial clicked once when each channel was changed and the cat mewed when it wanted to be let out.

 

However, outside the house, access to information was problematic at best. Fortunately, while our children were young, my husband   who also has a vision disability   had enough sight to do the groceries, reading prices or checking bills with a magnifying glass. As his sight deteriorated, however, the information barriers gradually grew, challenging our independence, self-reliance and control over our personal lives.

 

Early on, the education system showed inflexibility and intolerance towards parents who were blind. Although students who were blind and integrated into the mainstream school system could have textbooks in Braille, I was told that I could not have Braille copies of the books used by my children. And yet, note after note came home urging parents to participate in their children’s education, to practise math and other drills with their children. (Of course, these notes were not in a form that I could read.)

 

Using the ingenuity and skills that had gotten me through university, I found ways around most of these barriers to participation in my children’s education. However, I slammed full-speed into a brick wall when it came to report cards. Even before they learned to read, our children were expected by school authorities to read their report cards to us, or else we were expected to get a volunteer to read the documents to us.

 

Our children were uncomfortable with this, even after they had learned to read. And using a volunteer from outside the family seemed to be an unwarranted intrusion into our family   an invasion of privacy.

 

Tackling the school board on this issue showed just how hard it is to change people’s attitudes. One teacher said:  Don’t worry about what is on the report card, as I will do what is best for your child.  A particularly insensitive principal stated publicly that his responsibility was services to children and not parents. If we could not read print report cards, that was not his problem, but our responsibility. (I guess we were to accommodate the school by finding ways to read print.)

 

This reverse accommodation  expectation propelled the issue to the superintendent of schools and the board of education, who replaced rejection with bureaucratic apathy. A board trustee even came to tell us that our demands for access to report cards were hurting our children’s education.

 

However, each time a report card arrived, the indignity spurred us on to redouble our efforts to obtain access in a dignified and equal manner like other parents. We filed a complaint with the Ontario Human Rights Commission. After several more years of debate, a new superintendent was appointed and soon we had a mutually acceptable agreement. An Alternative Format Policy was developed and adopted by the school board. By the time our son reached Grade Ten, we began to receive report cards we could read independently. This policy means that, today, other parents who are blind can obtain report cards and other materials in a form they can read independently   just as parents with sight have been doing for decades.

 

From this struggle, we learned that resolving such issues would be long, drawn out, emotionally draining and painful. There would be many disappointments and setbacks. However, we learned that many people with disabilities can benefit from the removal of barriers that force us into a role of dependence as a matter of administrative convenience, without regard for the human cost of such shortsightedness.

 

For years, our requests for information and accommodation were frequently met with: Well, can’t your children do that for you?  But we had long since decided that our children should not be required to assume any more obligations or responsibilities, because of our blindness, than other children. Perhaps the greatest example of this pass-the-buck attitude towards customer service occurred with a local grocery store.

 

For a number of years, we had been provided with help by store staff to select grocery products from the shelves for purchase. As a result of competition, the store began losing money and changed its approach to customer service. One day it was suggested that we should get our children to do the grocery shopping. When we protested, the owner dismissed our concerns.

 

Another complaint to the Ontario Human Rights Commission was filed, and dragged on for three years. Our point was that, if customers who are blind were provided with access to the same information provided to sighted customers   on signs, product labels, price stickers, and sales flyers   we would really enjoy doing our shopping without any assistance from the store.

 

As the issue moved towards formal review by the commission, the store was sold and the new owners were anxious to settle. Today, the store will provide assistance, in the form of a knowledgeable employee who walks through the store with one of us and selects products that we choose.

 

Also as a result of this settlement, the store’s weekly sales flyer is uploaded every week to a local computer bulletin board service (BBS). We often get the electronic version before the print flyer is delivered to our street. Now, any person who is blind and computer literate can access this sales flyer   and save money on specials just like the rest of the community.

As we battled the grocery shopping issue, we also began to have problems with money management, resulting from lack of access to bank statements and reports. The issue came to a head when the bank started rolling over term deposits at a low rate of interest because we had not reinvested the money. The bank said we had been sent print notices   which we could not read independently. We also discovered that home mortgages could now be paid on a bi-weekly basis, substantially reducing the interest paid. This had been promoted to customers in written form and many were benefiting long before we accidentally learned about it.

 

We discussed our concerns with bank officials. Over a period of several years, it became clear that the bank viewed our desire for access to information as a matter of charity. On several occasions they even went so far as to point out that it  gave money to an organization for the blind  and that was where we should be going for help with our financial management.

 

This time, we approached the Canadian Human Rights Commission for help, since banks are under the jurisdiction of the federal government. After yet another year of debate, the complaint was officially accepted by the commission in September, 1991. As discussions continued, the issue took on a life of its own and expanded to include electronic banking, banking machines and access to all bank publications.

In an effort to resolve the complaint, the Royal Bank of Canada introduced Braille statements for customers with personal chequing accounts. By that time, however, we would not settle for anything less than policy commitments and an acknowledgement of our right to equal access to bank-generated client information.

 

Eventually, in an effort to move this matter forward, we settled in 1996. However, the additional access to information and the promises of more to come, including access to automated banking machines (ABMs), are gratifying indeed. The industry may maintain that its efforts are not a result of complaints, but the fact remains that ABMs have been around now for more than a decade   and Braille has been around for more than a century   and yet access to information for customers who are blind is just now being seriously considered by the chartered banks.

 

The Royal Bank of Canada outlined a new policy to improve its service to people with visual disabilities, and agreed to report annually to the Canadian Human Rights Commission until adequate access to automated banking machines had been provided to customers who are blind. Less than a year later, the Royal Bank opened its first banking machine with audio output.

 

While the bank issue was crawling along, another information barrier was creeping into our home life. Bell Canada had asked the Canadian Radio-Television and Telecommunications Commission (CRTC) for permission to charge people who are blind for directory assistance. Yet the company had no intention of making telephone directories available in formats accessible to these customers. A small band of concerned consumers from across the country wrote letters, briefs, interventions and petitions to the CRTC, and ultimately the commission denied this component of the Bell Canada rate increase application.

 

However, once raised, the issue of access to information within the telecommunications network would not go away until resolved. Several years of correspondence between the CRTC, Bell Canada and ourselves eventually evolved into a formal application for access to information. While we did not achieve all that we had hoped, the ice has been broken. Under the Telecommunications Act, we are entitled to know what we are paying for and what services we can expect for our monthly subscriber’s payment.

 

A similar issue intruded into our dialogue with the CRTC when the cable industry introduced new channels and required all subscribers to accept and pay for these services (known as a  negative billing  process). Of the many documents the cable company was required by the CRTC to provide to customers, none was given to us in a format we could read. So, we approached the CRTC and requested that Rogers Cable Company be required to provide its subscribers who were blind with the same information that was required to be circulated to all subscribers.

 

Like other issues, the focus kept expanding and a resolution seemed to slip further away. In an effort to get the process moving, we filed a complaint against the CRTC with the Canadian Human Rights Commission, expecting that it would dismiss the complaint if any positive movement toward greater access occurred. I believe that this action encouraged the CRTC to take both the Bell Canada and Rogers Cable issues much more seriously and issue its directives. We and other customers who are blind can now receive our Bell Canada account statements and bills, and the channel line-up from Rogers Cable, in Braille.

 

However, significant issues remain to be resolved. The CRTC has not established a policy to ensure that those companies it regulates include customers who are blind equally in their service-delivery systems.

 

Visual-only displays continue to become more common in the telephone industry to identify incoming callers and provide a host of other information. The information on these screens will become more essential as telephone companies move into direct competition with cable and direct satellite to home services for customers. Telephone directories, including Yellow Pages listings, needed to make full use of telephone service still remain marginally available to customers who are blind.

 

Another outstanding issue is access to television program channel listings. Most cable services offer program listings to subscribers which scroll down half of a television screen, with the other half of the screen and all of the audio devoted to promotional advertisements. All subscribers contribute to the service, but only sighted subscribers can use it to determine at a glance what programs are being aired at a specific time. Sighted subscribers also have access to several newspaper or magazine sources for this program information. Even though persons who are blind do not have access to this information, there is strong resistance to making this service accessible to them.

 

The use of visual displays and music as a pause in the announcer’s commentary, or as a filler or break in programming, also creates a communication barrier. This is quite a serious issue since, for example, the weather channel gives all individual temperatures visually with music and no verbal announcements. What is more important on a weather information service than the temperature information? Yet the CRTC would not issue a policy addressing these concerns. This placed the access burden back on the shoulders of persons who are blind by deciding that this issue had to be addressed service-by-service, through individual complaints, or at the time of license renewal by intervention.

 

However, the CRTC did decide that cable companies had to make their community channel program information available in a usable format for persons who are blind, and that the community announcements must be made available in both audio and visual formats. The precedent has been set, but full access is a long way away.

 

The Royal Bank of Canada is putting into service a few audio banking machines, and the Canadian Standards Association has established a committee to develop a standard for barrier-free design for ABMs. The Canadian Cable Television Association is supposedly developing industry guidelines on access for persons with disabilities.

 

In the spring of this year, the CRTC issued Public Notice 1998-44 announcing a Canadian television policy review requesting public comments. I am pleased to see that, among the many questions posed, Question 58 relates to making television programming reasonably reflective of, and accessible to, persons with disabilities, and Question 66 relates to the probision of video descriptive services for people who are blind.

What will the future hold? Will direct home satellite service be fully accessible to a person who is blind? Will the information displays on smart cards be usable? Will electronic ticketing systems be accessible? Will home shopping by phone or cable be user-friendly for all shoppers? I believe that our greatest challenge in the future is to maintain access as new technologies and service models are introduced.

 

Choice is an integral part of consumerism. I dream that in the next century, when I choose to request a Braille menu, a Braille phone bill or a Braille manual for my bread maker, my request will be embraced warmly by the service provider. Customer service is also for consumers who are blind. Companies must come to accept that equal pay for services really warrants equal access to service information, in the most effective medium for the user.

 

Marie Laporte-Stark is an advocate and freelance writer living in Ottawa, Ontario.

 

ADVOCACY AND PERSONAL EMPOWERMENT

ADVOCACY AND PERSONAL EMPOWERMENT

By: Chris and Marie Stark

 

  • Editor’s Note: Chris and Marie Stark are long-time advocates for increased access, universal design and true inclusion for blind persons. They live in Ottawa.
  • People who are blind, deaf-blind and partially sighted have been sucker punched for years by product and service providers, who say that universal design and retrofits are too costly to ensure usability for all.

 

But advocacy provides a practical vehicle for change and empowerment, and it can have a direct positive impact on quality of life and personal well-being.

 

In 1996, we settled a human rights complaint with the Royal Bank of Canada on condition they develop and implement an accessible automated banking machine (ABM). The first accessible ABM was introduced in Ottawa in 1997.

 

Once the technology was proven, we believed access to most ABM’s in Canada would follow. Seven years later, however, less than one percent of ABM’s can be used independently by blind Canadians and none by  People who are deaf-blind.

 

We first received our bank, credit card and other statements in Braille, but we kept pushing and now we can get most of that information online or via email. The Royal Bank has made its websites and telephone banking service reasonably functional for people who are blind.

 

But exclusion is a chronic problem, and it is a part of Canadian corporate culture. Nowhere is this more evident than the  telecommunications sector.

 

In  the mid 90’s, we first became entangled with Bell Canada over a plan to charge people who are blind for directory assistance, even though they didn’t provide us with accessible phone books. Other decisions related to pay phone and yellow page accessibility, and the provision of phone bills we can read independently. A decade later, we are still struggling to gain equal and equitable service, like in the use of cell phones.

 

Television service providers apparently didn’t think they had to serve people who are blind either.

 

When we asked the weather network to make its visuals accessible, it offered a separate, inferior and not-real-time information  weather broadcast service designed especially for “the Blind”.

 

We asked that cable companies like Rogers make their channel line-ups, bills and terms and conditions of service available to us in formats we can read. They were ordered to do so.

 

Again, we expected that awareness of our needs would lead to inclusion. Imagine our consternation when digital television came along with on-screen programming menus that we cannot use!

 

On a more local level, the ability to vote privately and independently in municipal elections has long been a fundamental issue for persons who are blind. In the good old days, citizens who are blind were asked to bring someone to mark their ballots or election officials occasionally insisted on marking the ballots. On one memorable occasion, we were forced to go into the utility closet among the mops and brooms and verbalize our selection to an election official. We did this in order to cast as secret a ballot as possible given the inaccessibility of the voting process at the time, including the lack of ballots we could use independently.

 

More recently, we were offered a template with our ballot, along with a list of candidates in large print and braille. We placed our marked ballots in a privacy sleeve and inserted it into the machine ourselves. We felt confident that our votes were counted accurately. As the machine will indicate if a ballot is unmarked, destroy the ballot and direct the voter to cast another ballot, gone are the days of spoiled ballots, which was always a concern for voters who are blind.

 

Sidewalks, or lack thereof, are a never-ending community issue. We do not like walking along the curb  on the edge of streets. It is hazardous to move around cars that are parked in the road.

 

We have had many sidewalks built as retrofits.   The first was along a busy  street so that we could walk our six-year-old daughter to dance class in safety. At first we were told not to worry because drivers could see that we were blind and would react accordingly. We pointed out that drivers could not see a white cane against a snowbank in a blizzard. It was a lovely sidewalk that enable us to go to several stores as well, and others use it today with their children.

 

Access to information is perhaps the greatest barrier that we face as citizens who are blind in attempting to live independently.  The strongest case for readable material centres around the right to know what you are paying for, including hydro, water and property tax bills. Technology has made providing this information easier, and we now get some sent to us electronically and securely over the internet.

 

Obtaining shopping information   is a continuing challenge.  Some stores like the local market will email us their specials. After a prolonged and protracted struggle with Canadian Tire  involving a human rights  complaint, its web site and e-flyer were made usable. Zellers, M and M Meats and a few other chains have dabbled in making their sales flyers accessible to persons who are blind.

 

One of our information needs is for grocery store specials. For many years, again after a human rights complaint,  The IGA in our former community made its specials available to us and provided a store person to assist with shopping. When we moved, Loblaws became the largest nearby grocery store. We asked for its flyer, and after a letter to the president pointing out the irony in having a Loblaws  Charitable Foundation while refusing to provide sales information in a readable form to people who are blind, the flyer was provided for a time. More recently, however, the employee responsible for this work left, and we have been waiting for the service to resume. We will have to fight this battle a second time.

 

It is discouraging that new services start out as inaccessible and informed consumer choice is still not a practical reality for Canadians who are blind. Universal access is still dependent on individual initiative.

 

Here are a few do’s and don’t’s that we have found helpful:

 

Be specific in the demand, expressing clearly what you want and why.

 

Be explicit about why the existing arrangement is not appropriate. Often this relates to equal access.

 

Be careful not to let the service provider pass your request off to a charity.

 

Be  prepared  for the exclusion arguments like: number of users;  too costly; who do you represent?;  what do the experts in blindness think?; who else must we consult?; and    who else is doing it?.

 

Try to prevent the issue from taking on  a life of its own–requiring studies, standards  and other excuses—something that hinders the development of a solution now.

 

Try to avoid solutions that segregate or are  labelled “SPECIAL”—solutions just for you.

 

Try to work with the appropriate officials, but be clear that the price of cooperation  is progress—now.

 

Be prepared to go outside the system in order to remove resistance, like by involving the media, elected representatives or regulatory bodies.

 

Do not  apologize for your commitment, beliefs or feelings.

 

Decide how much effort the issue is worth in terms of  your valuable time and  stamina, and be prepared to walk away sometimes with just the satisfaction of trying.

 

To us, advocacy means personal choice and commitment. It is a life force for bettering our human condition and  a value to be cherished. Self advocacy is a lifelong occupation—from the cradle to the grave.

 

 

 

 

 

 

See through barriers. Making conferences and events accessible to people who are Blind

Originally Written by

Marie Stark

 

See through barriers. Making conferences and events accessible to people who are blind.

People who are blind frequently encounter barriers that prevent their full participation in meetings, conferences, and exhibits. Here are a few low-cost and no-cost ideas to make people who are blind feel welcome:

The Announcement: Invite participants to identify their needs in advance.
Mention the availability of material in multiple formats such as large print, Braille, audio, and electronic. Avoid using the word ‘special’ as these needs are not frills.

Circulate notices electronically. Many people who are blind have access to computers with speech readout, refreshable Braille displays or enlarged text.

Call people who are blind or have low vision before the event with orientation information such as the route from the nearest bus stop to the event, room layout, amenities and washroom locations, food services and menu choices.

If people are referred to a website for information, ensure that the site meets world wide web consortium access standards. People who are blind often have difficulty accessing information in a windows environment because of design barriers including graphics, frames, charts and programs such as Adobe Acrobat.

The Facility

When choosing a location, consider the needs of people who do not drive.
Is the bus service in close proximity to the event location?
Are there sidewalks?

Is there someone at the entrance to give directions?

Is the route from the entrance to the event uncluttered and free from obstacles that are not detectable by cane?

Registration
When someone who is blind approaches the registration table,

Explain the registration process and signage information.

Describe options and choices, including cost implications. Do not assume that people who have a visual disability will want the cheapest choice available.

Ensure that the participants name tag has a tactile indicator so that they can put it on the right way up.

You can put the tag on for the guest, but ask first. Explain color or other activity coded information on the tag.
Review the information kit and explain all documents.
People receiving multiple formats should also be given the full printed kit for their company’s files or discussion with colleagues.

The Event
The first announcement at each event should include:

The identification of the speaker, topics to be covered, order of speakers, how people will be recognized during discussion, time table for sessions, amenities, such as where to find the washrooms, and relieving areas for guide dogs

Lunch and receptions.

Announcements about what’s offered help everyone to enjoy a social event. For instance, this evening we have three buffets and two bars. With your back to the entrance door, there is a bar with an attendant to the right of the door where cocktails are available. Using the same reference point, you will find, in the far left-hand back corner, a self-service table for wine. At the island in the center of the room, are warm items including pizza, potato skins, chicken wings, etcetera.

Catering staff should be advised to announce the food they are serving on hors d’ œuvre trays as they approach groups of people at the reception.

Self-service meals can present obstacles. Announcing the menu before meal breaks allows everyone to know the choices offered. Some people who are blind may prefer to go through the buffet line-up while others may prefer to be served at a table. Having well-trained catering staff available to discretely assist greatly increases the integration of participants who are blind.

By trying to incorporate as many of these suggestions as possible at your next event, you make people with visual disabilities feel welcome.